I founded the Carnival of MS Bloggers in 2007 to connect the growing MS Blogging Community. My vision was to become the central hub where bloggers could find each other and to feature a collection of independent patient voices.

As larger MS organizations have also begun to feature patient voices on their own websites in recent years, the Carnival of MS Bloggers is no longer the single driving force in serving this wonderful community. For that we should all be grateful.

Thank you for continuing to support me in this one-person labor of love over the years. As of now, I will be taking a break from hosting the Carnival of MS Bloggers.

Please feel free to continue to email me to alert me to new MS blogs to add to the comprehensive MS Blogging Community index.

Lisa Emrich

MS Bloggers A-D

MS Bloggers E-L

MS Bloggers M

MS Bloggers N-S

MS Bloggers T-Z

MS Caregivers and Loved Ones


Thursday, October 21, 2010

Carnival of MS Bloggers #74

Welcome to the Carnival of MS Bloggers, a bi-weekly compendium of thoughts and experiences shared by those living with multiple sclerosis.

Memory, Language, and Humor
by Mary of Travelogue for the Universe

Proteins and Memory,
are they one & the same?
If so true, it makes proteins
so important in our game.
The shots of proteins like the bee sting
can slow the MonSter that I know.
Is my brain full of complex
Protein strands imprinted with
Memories of long ago?
And will the funding last forever,
Will the protein soup be ever?
Will they some day, find a new way
to deliver protein feed.
To chew or swallow, cook or wallow in exactly
what I need?
For now I take the proteins,
shots really not that bad.
The only way I can, The only way is how
to keep the MonSter
far out on the curb.

by Jenn of Losing It

The day we finally went to the ER was the day I couldn’t put on my underwear and then face-planted in my kitchen, my body contorted on the floor like some sort of crime-scene chalk outline. I thought about how I might be paralyzed and wondered which of my darling pets would start gnawing me first. Et tu, Ella? (Just to clarify: I wasn’t naked in my kitchen. Separate incidents. Not that there’s anything wrong with that.)

So we head to Baptist NLR, the closest hospital to our house, and begin the obligatory ER wait. I see the nurse, another nurse, a doctor, and then a neurologist. He is a young guy, but he put me immediately at ease. He was competent, thoughtful, thorough, and Indian. I only point this out because, as it will become clear soon, there was a slight language barrier.

He did all of the standard neurological tests (I know this because I had epilepsy when I was younger). And then he had me walk up and down the hallway of the ER. I say walk, but it was more of a shuffle-lurch I was rocking at that point. I think he knew within the first five minutes what was wrong with me, but, like I said, he’s thorough.

And then we went back to the small ER room. He told us I would be staying at the hospital, which came as quite a shock because I expected to be in and out and on my merry little way. (Why I thought this, I still don’t know. Optimism? Denial?) I just nodded, trying to be the perfect patient, even though my throat was closing up as the anxiety crept in. His words were competing with my inner dialogue, and losing.

I needed to stay for days of observation and treatment, he told us. And I would get on steel rods for those five days, he said. He left the room to get my admittance paperwork started.

“Steel rods?” I blurted incredulously to Nick, my carefully constructed composure now crumbling. “Why on earth would I get temporary steel rods put in me? What good will that do? I don’t want surgery. Let’s leave. I’ll just keep the gown on.”

I was in hysterics.

Try as he may, Nick couldn’t stifle his laughter, which nearly provoked me to start throwing hospital equipment at him (Latex gloves, by the way, aren’t exactly as threatening as they may at first seem).

“Steroids, Jenn. He’s going to put you on a five-day treatment of steroids.”


I began giggling uncontrollably. Nick joined in, our chuckling filling that small room with the bad fluorescent lights and echoing down the hallway.

And in that moment we knew: Whatever came our way, we’d be OK.

Potty Humor in New Jersey
by Lisa of Brass and Ivory

Folks with MS are not the only ones who find value in appropriately-placed facilities.

"Reserved Seating"

"I Have To Pee"
After admiring the handiwork of these signs (and laughing), I just had to document the spottings.  Have you spotted clever signs on your journeys?  If so, please share them in the comments section.

This concludes the 74th edition of the Carnival.

The next Carnival of MS Bloggers will be hosted here on November 4, 2010. Please remember to submit a post (via email) from your blog of which you are particularly proud, or which you simply want to share, by noon on Tuesday, November 2, 2010.

Thank you.

Comments for this post.

Thursday, October 7, 2010

Carnival of MS Bloggers #73

Welcome to the Carnival of MS Bloggers, a bi-weekly compendium of thoughts and experiences shared by those living with multiple sclerosis.

A Good Stretch and Tickling the Funny Bone

by Jennifer Digmann

It was eight years ago today – September 28, 2010. Eight years ago that I met Dan and told my mom, “He’s really cute and sweet, but mom – he likes Springsteen. Yuck! And he loves baseball. How boring!!”

Now eight years later, not only am I happily married to Dan, but I’ve seen Bruce in concert six times – loving every one of them. And on our honeymoon, we saw the Boston Red Sox play baseball in Toronto. So it shouldn’t come as much of a surprise that we celebrated our fifth anniversary by meeting up with friends from Iowa to see a Cubs game in Chicago.

A gorgeous sunny day for baseball.
What a gorgeous, sunny day for baseball.

Dan, our friends Pam, Steve, D.J., Deb, and I found our seats about 30 minutes before the first pitch.  Wrigley Field, what a great evening!!

Our seats were at the very back of the second tier on the third base side. And if you regularly read our blog or know my life with MS, you know a bathroom has to be part of this story. The family restrooms, the ones I use with Dan’s help, unfortunately were located either on the level above us or on the level below us. Imagine having to wait for the elevator every time you had to go to the bathroom!

That’s exactly what I had to do. But it only took me one such trip before tired of making it. Luckily, we noticed vacant accessible seats closer to the family restroom, which coincidently had an incredible view of the ballpark. So I kindly asked a friendly usher, “How can we get seats like these? You know, ones closer to the bathrooms I use?” He understood my situation and encouraged me to check with Fan Services to inquire about upgrading our tickets.

Long story short: We were able to upgrade close to the family restroom on the first level, which landed us 10 rows from the field right behind home plate! It cost us a little more for these great seats, but it was SO worth it.
What a wonderful view of the action.

And just when the night seemed to be perfect, remember that band-aid on Dan’s forehead I mentioned in my last blog? Here’s the less than perfect way that happened - there had to be a way to get me and my powerchair that close to the field, and it involved me taking a motorized chairlift. In helping to secure my chair to said chairlift, my loving husband stumbled - stupid numb MS feet - and he hit his head hard.

Dan had to be treated by the nurses in the ballpark’s First Aid station. They were quick to treat him (no stitches needed!) and he was back to the game before the second inning ended. Hence his name is now, and forever, on file at Wrigley Field… granted it is in medical records but still, how many of us can say that?

What a stretch!
What a stretch!

The game was great, highlighted by standing with Dan during the seventh-inning stretch where Hall of Fame running back Gale Sayers sang “Take Me Out to the Ball Game.”

What a stretch!

And speaking of singing, in the eighth inning three ballpark ushers sang “Happy Anniversary” to us and presented us with a ball used during the game. It even has dirt and scuffs on it. What a souvenir!

And what a night for me, a girl who once hated baseball. A girl who doesn’t let multiple sclerosis stand in the way of experiencing life. A great life with that cute man I met eight years ago.

from Multiple Sclerosis & Me by S.S-O

Saturday I had to take my car into Honda.  I got there and the Honda man opened my door.  I told him my usual, "I'll take a moment..." because in addition to just taking my time to get out the car, I was juggling a book, a cup of coffee, the cane, my phone and my handbag.

He said, "no problem...take ur time.  Would u like me to hold something for u?"

I said, "oh yes, thank u"...

 and handed him the cane!!

It Made Me Laugh
by Karen of Meandering...One moment please
Two neurologists are hot air ballooning when clouds come up and they realize they're lost. They go lower, and suddenly the clouds part and they see that they're passing over a field where a man is on a tractor.

One of the neurologists leans out and yells, "Hey! Where are we?"

The man on the tractor looks up and shouts back, "In a balloon!"

Then the clouds swallow them up again. The first neurologist smiles. "This has been a great day! We saw good scenery, we put back some brewskies, and now to make the day complete, the first guy we meet is a neurologist too."

"Wait a minute!" interjects his friend. "That looked like a farmer to me. What makes you say he's a neurologist?"

"Well, think about how he answered our question. He gave us precise localization and it didn't help a bit."


Going off the SWANK Diet!

This concludes the 73rd edition of the Carnival.

The next Carnival of MS Bloggers will be hosted here on October 21, 2010. Please remember to submit a post (via email) from your blog of which you are particularly proud, or which you simply want to share, by noon on Tuesday, October 19, 2010.

Thank you.

Comments for this post.