EndMS Conference: Day 1
-
After a rainy trip with Via and a somewhat confused wander of the streets
of Toronto (dang sense of direction), I was comfortably ensconced in my
hote...
5 days ago
I founded the Carnival of MS Bloggers in 2007 to connect the growing MS Blogging Community. My vision was to become the central hub where bloggers could find each other and to feature a collection of independent patient voices.As larger MS organizations have also begun to feature patient voices on their own websites in recent years, the Carnival of MS Bloggers is no longer the single driving force in serving this wonderful community. For that we should all be grateful.Thank you for continuing to support me in this one-person labor of love over the years. As of now, I will be taking a break from hosting the Carnival of MS Bloggers.Please feel free to continue to email me to alert me to new MS blogs to add to the comprehensive MS Blogging Community index.Sincerely,Lisa Emrich
MS Bloggers A-D
-
-
See how I’m literally socking it to MS fashion - Tuesday, November 14, 2023, marks my 26th anniversary of the day I was diagnosed with Multiple Sclerosis. Yes, it has been 26 years – well over half of my...3 weeks ago
-
-
The Insider’s Guide to Four People to Follow While Living With MS - It’s been a few months since I’ve written a blog post, and I’ve missed being here with you. There are endless reasons why I had to step away. For now, I’...3 months ago
-
Since this just happened to us again: - curiousitycollective: Since this just happened to us again: You cannot tell if someone has mobility issues just by looking at them and Not everyone with ...5 months ago
-
Moving Swiftly on… - My late mum was the fount of all knowledge when it came to family history. She knew the names of all the distant cousins; who was born out of wedlock; who ...8 months ago
-
Winter - Much of what you hear about seasonal impacts in MS will talk about heat intolerance and how to stay cool during the summer months. But cold weather can ...9 months ago
-
Hotel Review-STAYBRIDGE SUITES – OVERLAND PARK, KS - We stayed two nights at the Staybridge Suites in Overland Park in May of 2021. The accessible room we stayed in was very spacious, as you can see from the ...10 months ago
-
-
10 years since my first dose - Hello there, Long time no speak eh?! I realised a week or so back that it was 10 years since my first dose of Alemtuzumab so I thought it was a good opp...2 years ago
-
I don’t do this anymore but… - I found this super helpful and super lovely. https://www.theguardian.com/lifeandstyle/2021/apr/22/10-ways-live-well-with-long-covid-chronic-illness?CMP=Shar...2 years ago
-
Pardon me for the dramatic pause - I’m feeling a whole world better today, but it took me all year to get here. There are still bits that I am untangling and I kept waiting for a big wrap up...2 years ago
-
Depression, Suicide and Multiple Sclerosis - *The year I was diagnosed with MS was immensely challenging mentally. Everything was a blur and, like many facing an ocean of uncertainty after a scary dia...2 years ago
-
Observing Being in your 20s in 2020 - The other day, I saw a meme that read, “My kids wanted to know what it was like for me growing up. So I took their phones, turned off the internet, gave th...3 years ago
-
Cottage Core and the simple life - Yesterday I was listening to NPR and heard about the new trend of #cottagecore. Apparently there is a surge of interest in a more simple, aesthetic and ...3 years ago
-
Finding Community and Support Through the RA Healthline App - Healthline has created such a positive network, community, and resource for those of us living with rheumatoid arthritis (RA) or rheumatoid disease (RD). ...3 years ago
-
Silence is Golden - So many have been asking me, "What should I say?" They feel obligated to post something, to show a sign of life and solidarity, to follow along with ...3 years ago
-
Day 72 - Ships Log Day 72. LOL! I have always wanted to have one of those. But I’m not on a ship. I am going to go backwards a little. I started reading the Bible. ...3 years ago
-
So Long But Not Goodbye - As you can see, I have not been updating here on any kind of regular basis in that last couple of years. I began blogging in 2001, and the blog has twisted...3 years ago
-
Camp Sunshine – A Cannabis Retreat - Well guys – we have officially gone and done it! We have purchased a 5 acre piece of property in Sedro Wooley Washington and are currently working on fix...4 years ago
-
Modifiable factors associated with depression and anxiety in multiple sclerosis - In Australian participants with multiple sclerosis (MS), researchers explored the links between lifestyle, depression, and anxiety. They included self-repo...4 years ago
-
I've moved! - Hello all! Please visit my new home at https://multiplesclerosis.net/author/kimd/ and check out my 300+ articles published there from 2013 to the present....4 years ago
-
3 years on. - 3 YEARS?Oooops.really meant to post before.i really did.but I didn't,lol. So why now,after all this time?i don't know to be honest,just been really down jus...4 years ago
-
Her - I did not see the Obituary. As soon as I open the daily paper, I go to the Obits page(s) and see who died. Sometime it's a teacher or a school official, ...4 years ago
-
Started with barfing, ended with giggling - Last Saturday, Mom and I spent the morning cleaning my breezeway (after ripping out the carpet on Monday!) and it was hot, hot, hot. She left around 4, an...4 years ago
-
Hi, my name is Lisa. And you are?… - Some common responses I get when I, inevitably and apologetically, tell people that I have a memory deficit include; “Oh Girl! I totally get it! I can’t re...5 years ago
-
-
World MS Day - *World MS Day 2018 is on May 30th.* There are 2.3 million people with MS worldwide. It is likely that hundreds of thousands remain undiagnosed and many ...5 years ago
-
-
To the ends of the Earth.. - Still going strong.... So its been quite a while since last I wrote anything and that hasn't been because I haven't wanted too, its been because I am dea...6 years ago
-
A Remembrance - Gone but not forgotten. Loved always. *Cyril Edward Parker (4th January 1923 – 31st August 2016)* Grief is an odd emotion. Most of the time you carry on...6 years ago
-
Finding #workthatworks with MS - In a survey completed by the MS Society in 2015 it was reported that as many as 80% of people with MS are forced to give up work within 15 years of diag...6 years ago
-
The Sickness - I've been sick for days now. SO MUCH MUCUS. Coughing it up, stuck in my nose... it's a problem. I've been taking Robitussin, but carefully because it react...6 years ago
-
on my mind... - I know. I haven't written anything in over a year, but it's hard to write in a Florida Journal when I no longer live in Florida, But tonight I'm sitting h...7 years ago
-
Six years and another tower climb! - I had been really hopeful for this blog! The reality quickly became obvious though, as vision problems, mobility issues, cognitive difficulties, basically ...7 years ago
-
-
Police State - I have nothing but empathy and solidarity with the Black Lives Matter movement. The overreach of police is an enormous problem that has me genuinely fearfu...7 years ago
-
-
Technical Difficulties – Please Stand By - I know it’s been a long time since there has been new content and that the site has been largely unmaintained, with the exception of regular WordPress upda...7 years ago
-
-
Back At It - Finally the problems with my blog have been resolved and I can start posting again. I find that my MS makes me prone to ignoring problems for awhile beca...7 years ago
-
A Year And A Half Flies By... - June 2014 - my last blog post. I was complaining about the "new normal" pain in my neck. Fast forward to March 2016, approximately 20 months into the now...7 years ago
-
Moving to Facebook - I forgot to tell everyone that I have made a lot of progress, but I have moved the updates to Facebook. It seems there is a lot more activity on Facebook,...7 years ago
-
Loosen The Fears That Bind You - Well, after five nights and a total of ten hours of sleep, I finally slept peacefully last night, thirteen hours to be exact. WHOO HOO, Monday night, Nov...8 years ago
-
An MS Journey - “A Picture of Health on the Outside” I was only 25 in 1980 when my MS symptoms started. My career was taking off, I was newly married, and my husband and I...8 years ago
-
Update 9/27 - What's it been? Seventeen months? I am going to try and remember what has transpired in that time. Some shit has gone down. Some shit is different, for bette...8 years ago
-
Still Trying To Enjoy Life. - Both of us need a boost as life gets harder due to my curvature of the made worse by lack of muscles caused by being in bed since feb 2012. Now I need mov...8 years ago
-
Tecfidera; Notes From The Lobster Pot - Multiple Sclerosis sucks, but these MS disease modifying drugs are the bane of my existence. I started Tecfidera in April after trying and failing the 3 ti...8 years ago
-
Ride Recap - 2015 Bike MS: Harmon's Best Dam Bike Ride - 2015 Bike MS: Harmon's Best Dam Bike Ride is on the books! We had another great ride this year - beautiful course, highest number of riders, team record f...8 years ago
-
WORLD MS DAY: Diagnosis anniversaries: what is the point in celebrating? - The 2-year anniversary of my confirmed diagnosis happened on May 15. Today is World MS Day. Today I share my anniversary-night reflections of what it has ...8 years ago
-
Spring is Here! - It has rained and rained and rained and rained, BUT everything is green and spring is here! We have lived outside more than we have inside. The woods behin...8 years ago
-
This blog has moved - This blog has moved. My blog now lives here: http://nicolagriffith.com/blog/ Visit any blog post there, and in the sidebar sign up to get posts by email o...8 years ago
-
Not dead. - It's been a while. *** From time-to-time I am overcome with the memory of an artist who lived in a flat on Brock Street in Peterborough circa 1995. At the ...9 years ago
-
On Control - Betrayal, duplicity, loss, jealousy, insecurity. Those adjectives are just a handful I use to describe the many shades of complexities between my body and ...9 years ago
-
It’s In The Eyes - Over the course of the last several months I’ve been experiencing some health issues that have kept me in bed most days. At times I would get up, look in ...9 years ago
-
Start, Stop, Start Again - School started up again last week and that one start alone was enough to throw just about anything else I had going into a tailspin. One of the results – n...9 years ago
-
a little of this and that - This week... Another painting of the bay... (oil on canvas) the view out my window on a rainy day... traditional oil still life - waaaay out of my comfor...9 years ago
-
Sweet 16 - Well, time certainly flies when you're not paying attention. The holidays were a mixed bag of tricks and emotions. Sad to be away from family and happy to ...9 years ago
-
Thankful for little things... - Its been a long time since I have written post here, I do pop by now and again keeping up with my friends blogs. Last night I had plenty of quiet time, and...9 years ago
-
Church - I haven't gone to Church weekly in about 8 months now. Part of it is laziness, part of it is MS Fatigue. However, I've actually become more "spiritu...10 years ago
-
Human Water Balloon - Okay, what an eventful month! First things first, I'm no longer working (at least for now). About 3 weeks ago I could barely stand up. My Bambi legs were i...10 years ago
-
Adequate Access to Complex Rehab Technology - Earlier this year, the National MS Society participated in a national call-in day in support of HR 942, a bill that would make Complex Rehab Technology a s...10 years ago
-
The Power of Language - The organization I volunteer for supports young carers and their families. Young carers may support a family member with a chronic physical or mental illn...10 years ago
-
Maine - We are now living in our new town in Maine. It is a beautiful place and so small, the tour of it takes about 10 minutes. I love it. The remodeling of ou...10 years ago
-
Much Better - Feeling good now. Humidity has broke. Humidex below 90 Fahrenheit. Nice days, all symptoms are gone. P.S. Love you Diane, {Eliana} with all my heart.10 years ago
-
Stay hydrated”..RIGHT, leave me alone! - Drink even if you think you aren't thirsty: if you feel thirsty, it means you are already dehydrated and your body is trying to let you know. Of course Pw...10 years ago
-
This year sucks too!!! - I realized I promised to write more and that was in 2012 and now it's the middle of June 2013. Well, it's been an outstanding year. I got sick and wound up...10 years ago
-
Happy Something Today.. Isn't It? - Oh yeah, Happy World MS Day to you. If you can be happy about that.. meh.. So, anyhoo, I approach the 5th anniversary of my 29th birthday.. I have to say...10 years ago
-
-
Judging others??? - I am just sitting here while everyone is still asleep. Times like this just gives me time to think and reflect. I at times feel that maybe I do that too mu...10 years ago
-
Bupa Delivery Date - So I e-mailed my MS nurse many times, because I didn't hear about my Injections arriving. She called Bupa and made them speed up the delivery. Yesterday (...10 years ago
-
POSTPONED – Invisible Illness Roundtable - The Invisible Illness Roundtable has been postponed until next week. I’m very sorry for the late notice on this, but I was waiting on an e-mail from the o...11 years ago
-
House progress - It's really looking like a house from the outside now! They dry walled last week and will be finishing up priming the walls this week. We have a closing da...11 years ago
-
-
My "crash" scene - Well, this serves me right. I can't think how to start. And, oh wow, I wish I'd been writing smaller posts than I usually do, more often, so that there wer...11 years ago
-
Moving - Amy's MS Blog is in the process of moving! I'm consolidating my two blogs, Amy's MS Blog and The MS Mom Blog, and moving them over to WordPress. The new U...11 years ago
-
Progress - 1st day home - Saturday Showed off in Therapy so I took a nap first thing Got up when boys got home, missed them so much! Sat at dining room table for sup...11 years ago
-
introducing my new blog and it’s very own facebook page! - since i wrote last time i have been feeling great, i’ve had energy and i’ve been sleeping well, not stumbling and barely numb! could it be the completely p...11 years ago
-
You are my dear and long-lost special friend - *This is the last post of this blog.* It is being replaced by http://www.journeydancing.com/ . Please follow me there. *Kind Promise: I will Celebrate Conn...11 years ago
-
Back, at least for today - I cannot believe it has been over a year since I have posted. At the same time, I think I needed a break. I have found myself overwhelmed by all of the b...11 years ago
-
Vicki's MS Gazette Debuts - Welcome to MS Education & Awareness Month. There is a new addition to my sidebar - Vicki's MS Gazette. There is a headline with the beginning of an articl...11 years ago
-
Success...maybe... - Today has been an "ARE YOU FRIKKIN KIDDING ME?!?!" kind of day. It's been so ridiculous I just can't help but laugh. Mostly. The whole thing is just...cr...11 years ago
-
Life Lesson 128: Intro: How do you Define Depression? - * Recently, I’ve spent several long and sleepless nights deep in thought, trying to understand and in some way define depression.* In the midst o...11 years ago
-
Gilenya experiences wanted! - Early this morning I received the following comment on my “Gilenya: Day 00” post from azcharli: “I started Gelenya on December 19th. The very first 6 h...11 years ago
-
An answer for ya :P - *For those of you who don’t know who I am, my name is Manon Halashyn and I am the youngest daughter of Michael Halashyn. I have been trying to figure out...11 years ago
-
Changes - A lot has happened since my last posting and by a lot I mean A LOT! Baby Jack Steven With that in mind my focus has changed a bit so I decided to start a f...12 years ago
-
Ben Goldacre: Battling bad science | Video on TED.com www.ted.com - TED Talks Every day there are news reports of new health advice, but how can you know if they're right? Doctor and epidemiologist Ben Goldacre shows us, at...12 years ago
-
The Emerging Consensus On CCSVI And MS: There Is No Correlation - from *A CCSVI Meta-Analysis* (by Dr. Steven Novella) For messy preliminary data a systematic review is perhaps better than meta-analysis to get an idea abo...12 years ago
-
yom kippur meditation - i forgive your indescretions and repeated mistakes and i forgive the hidden nature of your heart i forgive you wallowing in the sadness the fear of trusting,...12 years ago
-
-
Refurbishment Project - our house! - One more room was completed in our house this weekend, yay! My Dad came to fit the carpet at the weekend (he is a carpet fitter, so that's very handy!) so ...12 years ago
-
When things pay off - I did some things right, recently. “Right,” because they helped me, later. At Wal-Mart, a few days ago, I bought a 24 oz Bubba insulated travel mug. It ...12 years ago
-
Anyone from North Carolina? - We are planning on our first real vacation ever, to North Carolina. Any of my followers, or visitors from North Carolina that can answer a couple of quest...12 years ago
-
The Geneva Convention - Well two weeks after the great infusion things are going well...actually things are going brilliantly. Unlike King Canute the waves of MS have retreated in...12 years ago
-
Clear as a bell! - That’s what my 12 month post-CCSVI scans said about of my neck veins last week. Stent like new! No narrowing! No clots! No blockages at all, in fact. Thank...12 years ago
-
Sanoviv Weekend Getaway...for a great price! - Every time I’ve been to the Sanoviv Medical Institute I have been touched by the experience. Not just my own experience but even more due to the people tha...12 years ago
-
-
Disastrous Diagnosis: Part 1 of a Patient Perspective Series - Being a chronically-ill patient for the past year has taught me something about the medical establishment–it’s extremely flawed. In a several-part series I...12 years ago
-
-
How can we know? - *"How can we know who we really are and what we really want, if we're constantly being told what we should want, and who we should be?"* *I'm under no circ...12 years ago
-
Stress & MS - I feel great most of the time, just when I get a little stressed I get the numbness back, like now. My work raised about $13,000+ for my treatment and I a...13 years ago
-
-
Feeling Better - I was beginning to believe that my MS was going to stay at the lower level it was after all the steroids infused and taken. However, I am slowly getting b...13 years ago
-
MS Walk on September 12, 2010 - I am proud to announce that I formed a team for the MS Walk on September 12th, 2010. My mom & I came up with *April's Angels*!! The reason being with all ...13 years ago
-
CCSVI treatment and current symptoms - I first went to Poland on the 13th Jan 2010 where I had balloon angioplasty on my left jugular,unfortunately after having no improvements from this I retur...13 years ago
-
Falling Down and Getting Back Up - I have been falling lately. Luckily, I haven't fallen on my elbow that just was operated on! We went to see a Shakespere play, and during intermission we ...13 years ago
-
Diana Gordon - Post Procedure - June 12 - I'm ba-a-a-ack!!! :) It is 4 days after my angioplasty procedure (June 8, 2010), and I feel GREAT!! I am not only a Pisces (March 3, 1965), but I...13 years ago
-
a question of balance - Happiness is not a matter of intensity but of balance, order, rhythm and harmony. Thomas Merton I can't take credit for this photograph. I took q...14 years ago
-
Is this thing on? - Testing, testing 1,2,3. Can you hear me? Hello? Anybody out there?..... Well, whatever the case I’m still here. Yes this bemused bastion of bald fancy is...14 years ago
-
Swidget 1.0 3 - Get the Swidget 1.0 widget and many other great free widgets at Widgetbox!14 years ago
-
Absent for the month of May. - This past month has been Doctors. Doctors Doctors.. It all started at the end of April. I had the Pre-Op with the Internal Medicine Doc, The ECG signalled ...14 years ago
-
Amazing race host biking for MS! - Phil Keoghan is biking across the U.S. to help raise money for Multiple Sclerosis. Read more here http://bit.ly/9UrTe Lets keep him in our prayers. I cant ...14 years ago
-
Pet crazy. Why yes, I am! - They are my days & a pretty good part of my nights. They're all the children I'm ever going to have, & they comfort me so well if I'm crying about this....14 years ago
-
Bowling Fundraiser - Saturday went great!!!! Everyone had a great time and we raised more money than I anticipated! I can't say thank you enough to everyone who came and partic...14 years ago
-
Hmmmnnn... - Well, I have my one-year-since-diagnosis MRI next Tuesday. Last Thursday, I had my 6-month check-up and my neuro found the clonus on my right foot was more...14 years ago
-
Healthy New Year - This year during the Jewish High Holidays of Rosh Hashana and Yom Kippur, I got dozens of cards, texts and emails from friends and family wishing me a "Hap...15 years ago
-
SEPTEMBER 2008 - HI EVERYONE!!! I'm still on Tysabri and doing so well, I guess I forgot about my blog until someone just asked. Tysabri has made my life so much better. I...15 years ago
-
Back again... for how long? - It's been what feels like years since I've updated here. I don't know why I decided to come back except that I am experiencing a great number of medical pr...15 years ago
-
Where Am I? - Folks, your guess is as good as mine! I've been under the weather and just not feeling pithy. Pissy, yes, not pithy though. I will return.15 years ago
-
-
Computers – Can Anything Else Be So Blessed and Evil Simultaneously? - Computers are evil! When they work, they are the greatest machines ever created. However, they have this tendency to “corrupt” over time. I think it mig...15 years ago
-
-
Endnote - Well, time for a little catch up because the blog is on the move.Let's see... Heather has quietly grown 4 wisdom teeth at 15 and one looks impacted so migh...17 years ago
-
-
-
-
-
-
-
-
MS Bloggers E-L
-
Bats in thd Belfry - Did I forget to mention here the bat that flew into my house the other night? It's the second time this has happened during my residence in Bali. Differ...5 days ago
-
Prioritizing Self-Care - Each year I approach the holiday season with excitedly high hopes and an underlying worry for the demands the season entails. I know I need to be even mo...2 weeks ago
-
-
What is Multiple Sclerosis?(MS) - M*ultiple Sclerosis is an unpredictable disease of the central nervous system. It is usually diagnosed by a neurologist after an MRI (magnetic resonance...4 months ago
-
A New Year! 22 years with Multiple Sclerosis - 22 years after diagnosis - It’s 2023 and it’s a new year! In February, 2001, I lost the ability to walk or see unassisted. The MS hit hard and fast while I was traveling across Gua...6 months ago
-
i feel (too?) good - Later today I go for a short appointment with the MS Nurses. Not a full MOT as far as I know, just a catch-up. Obviously this is the first face-to-face ...8 months ago
-
-
FUMS 119 – National Lampoon’s Chronically Ill Christmas with The MS Pod Squad - FUMS: Giving MS The Finger FUMS 119 – National Lampoon’s Chronically Ill Christmas with The MS Pod Squad Being a podcaster can be a lonely life. So what ...1 year ago
-
Voted Today, Sidewalks Are Still An Issue - Went to vote today, yay democracy! Went by myself out amongst the humans, so I was 4 wheelin through the streets of Perry Hall. Not a bad trip, ab...1 year ago
-
The FYP Commands Me - This post is 100% for Tara&Mascara, brought to us by the magic of the TikTok FYP. This morning, I woke up, and the FYP decided to show me that you were on ...1 year ago
-
-
Cleaning the House - So, things are getting tight around here. My job ended on March 14th, with a possibility of being resurrected at a future date. But the future, as we all k...2 years ago
-
Why Me? - Why me? No matter how lasting or fleeting, it’s a question that we instinctively ask ourselves—myself included. But why? Perhaps the reason many of us open...2 years ago
-
September 2021 - Remembering 9-11 today! 20 years. 💕🇺🇸 We are headed to Mount Rainier this morning. It’s one of my favorite happy places and a good time to reflect ab...2 years ago
-
A New Home for LLM Calling - [image: LLM Calling Logo starring Little Guy] It's been a long time coming but I've finally taken the plunge to bring everything that is me, from all ove...2 years ago
-
Growing Up Disabled in Australia is published - One in five Australians has a disability. And disability presents itself in many ways. Yet disabled people are […] The post Growing Up Disabled in Austra...2 years ago
-
COVID Emergency Preparedness - Normally I write about being prepared for weather emergencies that can disrupt our lives. Instead, I find myself writing about another type of medical e...3 years ago
-
Anita Godwin - Anita Godwin, 65, of Jacksonville, passed away just as the sun faded into the inky sky Oct. 18, 2020. She came into this world Jan. 15, 1955, the firstborn...3 years ago
-
Winter in Minnesota Jan 8 2020 - 2019 Started with record snowfall crushing the old record. Most of it fell from 4 February~ 15 March 2019. Nacho and I walked a record setting low for a...3 years ago
-
my back yard pt. 2 - well. there's a new addition to the pet cemetery. last week we lost Rajah, brother to nishita and punima who died in 2o18. he's buried adjacent to them. ...3 years ago
-
Farewell my dear friends - On January 30, 2020 Cathy P. Aten passed away from complications related to her Primary Progressive MS. Today would have been her 65th birthday. She knew t...3 years ago
-
what is it you really want? - If you’ve been through medical challenges, you’ll know one of the benefits: you learn what’s important to you in life. Because, of course, you realize that...4 years ago
-
The 7 VIBRANTs. Energy to Naturally Fuel Your Life. - Life’s Energy and Energy’s life. Obvious, probably . . . but have you ever really thought about it? Energy fuels cars, heats homes, washes clot...4 years ago
-
"Moving On" - Again. It's been some time since I've posted anything here at "Lifting My Spoon". I do continue to post, blog, whatever, at other places online. None of it ...4 years ago
-
-
A Little Off My Chest- Gave Me More Room to Breathe - A LONG STORY... I'M AIRING OUT about a thing or 2. OK, More like 100 things and this is being posted on FB and my Blog. ❤️ Holy 🐄 !! I didn't expect so...4 years ago
-
Source of Caffeine? - I have spent my entire life shunning coffee as something too bitter to drink. After reading about the “health benefits” of drinking coffee I decided to p...5 years ago
-
Under seven weeks and counting... - Well, a fair amount has happened since my last blog, in that I've moved out of my flat, and started a new temp role. I've spent the past few weeks sorting ...5 years ago
-
What Happened? Where’d I Go? - When we last heard from our fearless protagonist, she was recovering from a barbaric treatment and celebrating walking with water. Then, poof! She disappea...5 years ago
-
A Few Good Men - Sometimes we get ourselves in trouble, and sometimes all it takes is a few good men or women to help us get out. Our friends from Cleveland came East for ...5 years ago
-
Florida, Here I come! - Boo Boo’s Fine 2017 FleeceIt’s been a while, well a very long, while since last posting. Years. Yes, I’m still spinning but at a reduced rate since whatev...5 years ago
-
-
A story of sea salt and yoga. Kind of. - This morning, as I was vacuuming sea salt off of the yoga mat in my bedroom, I had a moment to pause and marvel at what-the-actual-fuck brought me to this ...5 years ago
-
-
The black hole... - I can’t organise myself. Fact. I don’t know why. Well I think I do, I never used to be like this, it just keeps getting worse. My consultant says that it i...5 years ago
-
Countdown to 40 BUCKET LIST- Starts NOW!!!!! - Countdown TO 40 BUCKET LIST 1. Spend the night at the Rose Parade & Watch the Rose Parade LIVE! 2. Lobster and Beer in Puerto Nuevo...6 years ago
-
Multiple Sclerosis: Is Diet A Magic Bullet? - Multiple Sclerosis: Is Diet A Magic Bullet? Eat this, avoid that and be healed! The real deal or just another sketchy marketing ploy? The post Multiple S...6 years ago
-
I Am Back! - I am back and I have an appointment with a Dr. on Monday. We will see what happens. Are there new meds? What are the effects of Tumeric? I have many qu...6 years ago
-
I’m Back! - Wow! It’s been so long since I’ve written anything to post on my blog, I don’t know where to start. I think it’s best to give you a few updates and leave s...6 years ago
-
Onion Layers - Once at FCA Camp, there was a challenge to eat gross things. I drew a raw white onion. I began taking big bites out of it like it was a red delicious apple...6 years ago
-
-
-
Posh food - I don't understand posh food. There, I've said it. First off, there's the dishes themselves. Picture your typical fine dining menu: - Quenelles of axmi...6 years ago
-
Treating illness and Staying Sane - On and off this machine today. 6 Days of treatment an di know It will get better Right???? - It has to Nauseous and in pain! Uuughh! Yet I believe in ...6 years ago
-
Making a Stement With Yarn - Lately, it has been obvious, that yarn can be used to make a statement .... we have seen the political statement pussyhats against Donald Trumph's politic...6 years ago
-
-
Hello old blog - Today, for the first time in ages, I feel a desire to blog. I often work things out best while I write. It makes thinking and problem solving easier but I ...7 years ago
-
“You should commit suicide”: On Americans’ Lack of Empathy for People with Disabilities and Chronic Illnesses. - Americans are often unwilling, or unable, to empathize with chronically ill and/or disabled people. Some rough thoughts on this topic: 1.) Disabled peopl...7 years ago
-
Advice to Hillary; thankfully never sent #imwithher - I have six things in common with Hillary. Both our husbands studied at Oxford where each lived at 46 Leckford Road, a house mine originally rented (and mov...7 years ago
-
Finding Balance - I’m four weeks into the diet, and I can say that I am finding new energy. I spring cleaned my room today (I’m a bachelor, and my room really needed it), di...7 years ago
-
September 2016 3B Beauty Bag Review - 3B (Beauty Beyond Borders) is a beauty subscription box that sends four to five deluxe Asian beauty samples for $12.00 a month. I say samples but most of t...7 years ago
-
Bike MS: Minuteman Ride - Michelle and I rode in Bike MS: Minuteman Ride which started in Concord. It was a VERY hot day and a very hilly course but somehow we survived and did the ...7 years ago
-
MS News: June 2016 - Check June's main MS news stories and do not forget to share them! Continue reading →7 years ago
-
How MS causes anxiety and some ways to manage it - I’m delighted to share this guest post from Abigail Budd, a writer and blogger who also works part-time in the criminal justice system in the UK. She was...7 years ago
-
Who'd a Thunk? - I think that sometimes I thought MS was the worst that could happen to me. Wrong! So wrong… We finished Christmas prep/cookies, and had a beautiful cel...7 years ago
-
Candida cure by Ann Boroch - I'm on my way to healing with this candida cure program and a Facebook support group. I've been close to following this plan for years. Finally, I have the...7 years ago
-
Loser - And if you ever took a moment to ponder what could possibly be worse than fucking up; Not trying to unfuck it. Perhaps displacing is what you have a pench...7 years ago
-
I Love "Me" Time - I am a HUGE advocate for self-care. Aside from annual physicals, well-woman exams *(OK, in the interest of full disclosure the only reason I really get m...8 years ago
-
A Day in the Life of (my) MS - Please note that every single person who has MS experiences different symptoms. While we may overlap in some ways and experience the same things at times, ...8 years ago
-
1200 Kalori Diyet Güvenli For You mi? Things You Know mı! - 1200 Kalori Diyet Güvenli For You mi? Things You Know mı! Bu gün diyet bir sürü insan vardır. Ben insanların aşırı seviyelere alarak görüyoruz. Bu aşırı yö...8 years ago
-
-
Brain Drain - 2015 is a watershed year for our understanding of brain drainage. A lymphatic system for the central nervous system has been discovered. For two centuri...8 years ago
-
Holy Hiatus, Batman! - Well, it’s been an incredibly long time since I have blogged. Having a baby really changes everything. EVERYTHING. Our baby is now 9 months old and I am...8 years ago
-
N.S., Ellington, CT - Dear MS, Double vision was a quite a stunt to play, you must have been so angry with me for ignoring you for so long. Of course any soldier in the armed fo...8 years ago
-
I'm Still Alive.... - I didn't realize how long it has been since I last updated this blog. So much has changed since my last post! It is late tonight but I think I will try to ...8 years ago
-
-
I am still alive! - Twenty months. It's hard for me to believe it has been that long since I've last written. It literally feels like just a few months. So little has ha...8 years ago
-
One Year of Masters Done. - Phew, got to catch my breath. Wow, my first year of Masters in clinical psychology is done! I'm not sure if I passed my exam, let alone the units yet... bu...9 years ago
-
The loss of a good woman - On the evening of September 1st Janine passed away at home in my arms. Her breathing was labored and her limbs were cold, and I told her everyone here woul...9 years ago
-
We made the big time! @WSJ #socialmedia #patientvoice @CraigLipset - So I get a call last night from Amy Marcus, the writer who penned the featured article about the dilemma that is raised by this very blog and others like i...9 years ago
-
It seems I have arrived! - After disastrous cooperative living, a premature decision to ĺ I’ve a life in an assisted living facility, in òne of the city’s oldest districts, I found w...9 years ago
-
Just so You Know - The only way you can write the truth is to assume that what you set down will never be read. Not by any other person, and not even by yourself at some la...9 years ago
-
Vacation! - Nothing new has been going on since the last post. Just mainly sitting around, cooking, cleaning and watching T.V. or movies. Yeah, thats winter in Ohio. O...9 years ago
-
GUILTY BY ASSOCIATION - At last check, I was the one diagnosed with Multiple Sclerosis, not my husband, not our daughters, not my mother, my father, my best friends, my cousins, m...9 years ago
-
Still fighting after all these years! - It's been a really long time since I posted on my blog, so a quick update. I switched from Copaxone injections last May, 2013. I've been taking the oral m...9 years ago
-
Feel Like Writing - Today I feel like writing and sharing.I started this blog to prove to myself I still have it.Yes I still have MS,but to show to myself even more,that I sti...10 years ago
-
WHEN I WALK: Documentary Film Rakes In Acclaim - The New York Times just gave my online buddy Jason DaSilva's new documentary film about dealing with MS a great review and made it a NYT Critic's Pick. Al...10 years ago
-
Five Years with Multiple Sclerosis - It's almost surreal to think five years ago today I started this blog. It was also the day I was diagnosed with Multiple Sclerosis. As poor as my memory ...10 years ago
-
Multipe Sclerosis: A Pill - Recently, I made the decision to start a medication for my Multiple Sclerosis. I have not taken one for several years. In the past, most of the ones I...10 years ago
-
-
My Hip Flexion Assist Device (HFAD) - The one thing people with MS always learn, sometimes the hard way is that no one device ever works. I don't think one will ever walk the way they did befor...10 years ago
-
I would love to use one of your pictures - the one of the person getting run over by the MS car in the motivational book im writing, may I have your permission? - ..if ‘Marbles4MS.org’ can get credit it for it - sure!10 years ago
-
CATCH YOU ON THE FLIP SIDE - Thank you for your readership and subscription to the MS Activist blog! In assessing each of our communications with MS activists (assessments are necessar...10 years ago
-
Begining Symptoms - Beginning symptoms 2004 Standing in a friends backyard I kept feeling like I was going to fall backwards. I leaned against the fence and we laughed how ho...10 years ago
-
Steve Dakin's Valediction for Diana - Diana – meditation on courage and thank you Wednesday 24 April It is 20 days since Diana died – early on Wednesday 4 April; 15 days since her funeral. I d...10 years ago
-
Doing it for yourself - Now then, we said that we're all done with Knit a Neuron. But we met so many people at the Barbican's Wonderseason who were enthused by Knit a Neuron th...10 years ago
-
Creative license - I get to do whatever I want, be whoever I want to be and all of that possibility is up to me. How cool is that? At 47, I realize that the gift of every da...10 years ago
-
C-A-M-P - The clocks have changed, and I am off to the American Camp Association conference in Atlantic City. This is by far my favorite conference ever! There are ...10 years ago
-
Could be worse - I sit in the waiting area of the hospital, waiting for the drugs that might pick me up from this latest MS relapse. People walk, shuffle or buzz past under...10 years ago
-
Sleep, sleep, how do I love thee? - ~ A couple of days ago, I went to a volunteer orientation for a place called "Muttville". It's a rescue center for senior dogs. I ended up staying for ab...10 years ago
-
Infusion # 31 - #31 decorated and done. Happy Holidays to all you MSers – Let’s unwrap a cure in 2013!10 years ago
-
White House Petition on EDS - The other day I stumbled upon a petition regarding Ehlers-Danlos Syndrome on the White House’s petition site. If you live in the U.S., please sign it to h...10 years ago
-
Head games, feeling profound and progressing - I have not posted in quite some time! It's not because I have nothing to say. But I created this to track my progress, or lack thereof, with the CCSVI pr...11 years ago
-
-
Things that I got for my 30th birthday... - - My very first seizure - Mouth to mouth by my German manfriend (I hadn’t stopped breathing - but a guy has to get it where he can) - A ver...11 years ago
-
so much.... - so much has happened... welcome... sorry i was gone for so long. I went to oregon for awhile and now i am back in colorado. I am enjoying being back with m...11 years ago
-
Maybe just one more.. - I thought I'd published the final chapter of this blog over a year ago but as I learn more about my brain I find I want to say more about it. The process o...11 years ago
-
SEPTEMBER 6, 2012 - I am writing this for everyone who followed me on my journey. I feel great. I am not a person who has never had MS, but I am working on ridding myself of f...11 years ago
-
-
Constant reminders in life; What is a Friend? - friend (frnd) *n.* *1. *A person whom one knows, likes, and trusts. *2. *A person whom one knows; an acquaintance. *3. *A person with whom one is allied in...11 years ago
-
Is it nearly two years? - How time flies. It was when I came to make my latest entry to CCSVI tracking that it came to me just how long it has been since my treatment in Poland. I ...11 years ago
-
-
Managing my MS - Hi! It's been forever since my last entry. Lots of things have been going on. Mostly good. My Ms is under control for the most part. I try and keep a pos...11 years ago
-
No e-mail for new topics? - I didn't get an updated e-mail about the topics we health activists were suppose to write this week, so I'll just share a few things. This week end was Eas...11 years ago
-
Household Of The Disabled - We have a unique household in that each of us; human, feline and canine are disabled in our own way. I shall deal with our pets today as our oldest cat, J...11 years ago
-
Two years later… - Wow! I nearly forgot that I even had this little blog.I should update it.That lift chair didn’t work out very well b ut I have used it these 2 years.It is...11 years ago
-
Just existing and watching time go by. - Thank you for all the kind comments left on my blog. Sorry that I haven't written or updated in quite some time, I know how frustrating that can be when yo...11 years ago
-
Blessings in disguise - My car died about 2 weeks ago, it wasn’t really tragic that the decision was made that it would be best to sell the car for several reasons. I really never...11 years ago
-
15 Ways to Fight MS Fatigue - Hello everyone! This article on fatigue is short and to the point. If gives some great suggestions on how to combat fatigue. Please add any strategies yo...11 years ago
-
My great grandad and Derren Brown - Here’s an odd title to get you going, just what does my great grandad have in common with Derren Brown. Well, let me tell you a story that is based in the ...12 years ago
-
The new spot... - Come join me over here so I can quit posting in 2 spots. Since Novartis decided to change the name of the drug from Fingolimod to Gilenya, I redid my blog ...12 years ago
-
The Day After - As usual the day after my Rebif injection I am an achy mess! However, after popping Tramadol and sleeping most of the day I woke up feeling refreshed. I ...12 years ago
-
What is PRIMARY PROGRESSIVE MS? - I remember when Karl was first diagnosed with PPMS. Karl had just come home from having emergency surgery on his spinal cord, and was barely able to get up...12 years ago
-
My Second CCSVI Venoplasty - Scene from Sheraton University City, room 1126 On 27 May, 2011, I was given a second treatment for the CCSVI in my MS. My son Edward flew up from Halifax N...12 years ago
-
Back in Edmonton - That week went by way too fast! We are back in Edmonton now, and thankfully, we seem to have brought the warm weather with us. Kimberly and I would like to...12 years ago
-
Results of my Doppler Ultrasound - May 2nd, 2010 - I know I haven't posted in a while, but there was not much to report. I'm still waiting for this blood clot to dissolve so I can get off this Coumadin. I...12 years ago
-
ROUND II - Hi everyone, Well I am scheduled back in to Dr. Siskin in Albany, NY May 9th first thing in the AM! So why am I returning? Things have returned to where ...12 years ago
-
Been doing some drawings lately - I've been trying to get back into art, but to do so, I need to re learn how to create using my hands the way that they work now. These drawings, up close ...12 years ago
-
Trying To Make A Difference - I am on a course in my life whereas I am not blogging much here at Living with MS. For those who have been reading my blog over the years, you know I hav...12 years ago
-
-
MS is like traffic... - I came up with this today and it gave me a bit of a chuckle so I thought I would share...hope y'all enjoy... MS is like Traffic.. 1. Just because you d...12 years ago
-
Close to my 3 month date - So here I am, at the end of October. This may be my favorite month of the year. So much relief after the hot Texas summer. The heat still turns my legs to ...13 years ago
-
Hopes... Fears... Expectations... And Just Generally Me! - This is going to be one of my more exposing posts. There's been a lot going on in my head as of late and to work through it I think I need to just put it a...13 years ago
-
Blog Interrupted! - If you're a reader of mine (or you're just looking around my website) you've noticed my ability to stay current writing a blog has been sketchy at best. I...13 years ago
-
-
Come sail away with me.... - well not really on a boat, but sure feels like it everyday. Wow, can't believe even just a simple task as sweeping my floor can be so fun.. not. LOL It was...13 years ago
-
Full Circle - For about 7 years before my husband and I were married, we used to spend a week every summer with his family and close family friends on a houseboat in Lak...13 years ago
-
Two Months Out......NO IMPROVEMENT - Like others who have been liberated and those who want to get the procedure I promised and prayed that I would be grateful for the procedure and any improv...13 years ago
-
Happy Monday! - Happy Monday! Busy day in our NICU and our new unit is up and running. So fun to work with Amy today. She is the best and so talented! Check out her Etsy...13 years ago
-
-
Sorry. - One hand typing here. Crazy life. Busy busy. Hazel is fantastic and amazing and beautiful and perfect. She is the best and most loving and helpful big sist...13 years ago
-
-
Will no longer post this blog - I have created a new blog called "Jim's Devotional Blog". Only people close to me will be able to read this blog.14 years ago
-
Why does my 'smart phone' make me feel so stupid? - So we've been doing a bunch of technology-related stuff around our house for the past couple of weeks. It began with David installing Windows 7. We never u...14 years ago
-
My Speech . . . - This is the speech I gave at the 30-Mile MS Challenge Walk Candlelighting Ceremony.14 years ago
-
Update/ Moving to South Carolina... - Hello everyone... or ANYONE who still checks this blog :) This post, as with most since my return from Chicago, is long overdue. I apologize for that. So h...14 years ago
-
-
I Dreamed A Dream - Couldn't help myself....I saw this video and I felt it demonstrated what we all need to learn: 1. Don't jump to judgment 2. Always Dream 3. There's Always ...14 years ago
-
Use Your Voice - Help End the Medicare Disability Waiting Act - Now is the time to use your voice or your computer to support eliminating the Medicare 24-Month Disability Waiting Period! Image Source The Ending the Me...14 years ago
-
Eating Healthier - I was in this cardiovascular program with my job, and was trying to eat better. I decided drinking soda was probably something I needed to give up. Also I ...14 years ago
-
New Year's Resolutions - For this new year I resolved to keep up with my blog better. As I sit here on the 14th day of 2009 making my first entry for the year, I'm thinking I'm doi...14 years ago
-
Summertime, But the Living’s Not Easy - Summer is definitely here with its long, sunny days. There was a time when you would find me worshiping the sun and basting with suntan oil, but no more....15 years ago
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
MS Bloggers M
-
A new treatment to save nerves - It thought I would not link it the paper so as not to upset the authors too much unless they read the blog and hey I may be wrong, but I thought I would te...9 hours ago
-
My Christmas Dilemma - I suck at this. Sixty years of holiday experience and I still suck at this. Gift giving is what I am talking about. I am thee absolute worst gift giver E...4 days ago
-
-
Thriving Through Injuries: My Active Aging Journey - At the age of 18, I transformed from a self-proclaimed couch potato into someone who walked and eventually ran to alleviate the pain associated with my lup...3 months ago
-
MS Mouth Ulcers and Sodium Lauryl Sulfate in Toothpaste - As I grew up and into my adult life I always suffered from a breakdown of the skin on the inside of my mouth. It seemed like every two or three weeks just ...4 months ago
-
Dragon Claw Talks- Helping Autoimmune Patients - The autoimmune group Dragon Claw hears stories from multiple MS patients in recent months. Catch the latest with MS warrior and author Melissa Cook and the...6 months ago
-
2023 MS Walk - Denver's MS Walk is May 6, and I plan to walk the walk this year by myself - meaning without my wheelchair, my walker, my Bioness devices, my walking bra...7 months ago
-
To any dear old readers! - Hello, Hey, how ARE YOU?!?!?! Past 3 years has been full time in the NHS, gruelling, and not had time to make posts. Hopefully will again very soon! You ma...8 months ago
-
putzing around in what I use to do - I have a genuine desire to get ideas out there, for some reason that escapes me I get really really creative in cold weather. I'm middle aged enough and co...11 months ago
-
Mushroom trunk - Looking up the trunk of a mushroom: [image: Borrowed from pigshitpoet!! Yes, it amuses me!!] Borrowed from pigshitpoet!! Yes, it amuses me!!11 months ago
-
Way to go Selma!! - So I know I haven’t written in….let’s see…….forever. I never know what to say. Yes. I’ve had a hard time this last year but I always have it in the back of...1 year ago
-
Disability stigma impacts self-esteem - Being labeled as disabled comes as a bit of a shock every time I hear someone refer to me that… The post Disability stigma impacts self-esteem appeared f...1 year ago
-
Office Hours for the Holidays - The Alliance/AFT office is closed for the winter break and holidays. We will reopen the office on Monday, January 3, 2022 at 9:00 a.m. If you need assi...1 year ago
-
Life in the time of COVID: Year Two - It has been about 18 months since the Coronavirus pandemic changed the world. I don’t know about you, but I am still trying to adjust to this “new normal.”...2 years ago
-
Ocrevus This article written in 2017 by wheelchairkamikaze Great blog poster... - http://www.wheelchairkamikaze.com/2017/05/ocrevus-dialogue-between-two.html2 years ago
-
Induction v escalation therapy in multiple sclerosis - Buron MD, Chalmer TA, Sellbjerg F. Initial high-efficacy disease-modifying therapy in multiple sclerosis. A nationwide cohort study. Neurology 2020; 9 5e1...3 years ago
-
No f*cking marathons. - As some of you might already know, I signed up for The May 50k in April. Given the quarantine situation I decided that this would be a good incentive to ke...3 years ago
-
Blogging Again - I am writing almost every single day, but not here. I am telling stories a few times a month but, usually, not about my MS. I am taking my second memoir c...3 years ago
-
Week Ending Friday 1/24/20 - This picture pretty much says it all as far as the highlight of this past week. I LOVE these boys. We watch our grandsons Maddox (age 5) and Nolie (age 2...3 years ago
-
Uncle George - George Francis Sines Aug. 23, 1936 - Oct. 19, 2017 Uncle George holding me. (I was asked to speak at his funeral service on October 23, 2017. These are ...4 years ago
-
Stem Cell Treatment #11 for Multiple Sclerosis - Stem cells are cells that can self-renew to produce more stem cells. Adult stem cells act as a repair system for the body, replenishing adult tissues. I ju...4 years ago
-
The awful shame about FAT - I went to see my neurologist this week for my six-monthly check-up. He is a lovely man who remembers little details about your life, which shows he has g...4 years ago
-
Kicking MS Awareness Month Directly In The Face - a short novel - March is typically a challenging month for me, healthfully speaking. It also happens to be MS Awareness Month. Coincidence? I think not. Listen, I don't...4 years ago
-
Changes - It's been a long time since I've posted, mostly because there are few big things that have occurred to me in that time period. In the wider world, there ha...4 years ago
-
Breastfeeding in Public - So, this is a really touchy subject for me. I am not against breastfeeding by any means. I breastfed all three of my children. Each for a different period ...4 years ago
-
Fifty is nifty - Just a quick note, a short piece, a little wave… November the 3rd 2018 will always be when I turned 50. Not in years but in tourist parkruns. Not the faste...5 years ago
-
Redefining Myself - In June of 2017 I discovered that my husband of 22 years no longer wanted to be married to me. From this point on I will refer to this as The Event. I find...5 years ago
-
To Blog or Not to Blog - I've always shied away from blogging. Not because I don't have anything to say, I have plenty to say, mostly it;s been out of fear. Fear that no one is...5 years ago
-
Backing in to re-entry - Do you admit to yourself that you’re depressed? Do you hide it? Steer clear of it? Sink into it? Have a mask at the ready? Write about it? How do I feel ...5 years ago
-
Tough times - Hey all, So Christmas and New Year have been and gone in the blink of an eye. We had a bit of a subdued one this year as we sadly lost my Nana on 23rd Decem...5 years ago
-
Heat Intolerance without an Air Conditioner - https://gofundme.com/mom-sonneedyourhelp Hi everybody, it's been so long since I've posted. I think it's time to start things back up again. I missed writi...5 years ago
-
My Experience with AVONEX - Hello all! Sorry, I have been MIA for a little while, but I’m back and I would like to share my experience using AVONEX! As many of you know, after being o...5 years ago
-
Sometimes getting Chiara to go to sleep is frustratingly but... - Sometimes getting Chiara to go to sleep is frustratingly but hilarious. She always makes us laugh! #lifeisbeautiful #tooCute #downsyndrome @changingthefa...6 years ago
-
Getting Ready For Summer With Education Quizzes!? - I know, the whole year has nearly passed already and you are still eating Christmas chocolate. I am the same. But we have to push on and go forth in the ...6 years ago
-
A new relapse - *Hey guys, sorry ive not been on in like 2 days. I have felt really sick. Im not sure if i mentioned it or not in previous posts, but EVERYTIME i eat white...6 years ago
-
Green - These past months have been a roller coaster of emotion and ability. At the beginning of the journey I was so wrapped up in the logistics and red tape that...6 years ago
-
The strength to keep going - So, I’ve reached the end of my physiotherapy and I have my review next week. I have learnt so much and the biggest thing that I have learnt is that physiot...6 years ago
-
Empathy and Sympathy - Empathy and Sympathy. I used to be the most sympathetic and empathetic person I knew. Something broke. Today I was thinking that before my husband passed...6 years ago
-
New Site - I've moved...check me out at www.msxats.com new look new feel same ole lime...6 years ago
-
Changing with MS - “Human beings can get used to virtually anything, given plenty of time and no choice in the matter whatsoever.” ― Tom Holt, Open Sesame What is one of the ...6 years ago
-
The Power of the Mind - Boy, has it been a while. I have become acutely aware of the power of my mind recently. I suffered some rather serious cognitive issues during my recent re...6 years ago
-
Streamline Your Daily Activities with MS - Multiple sclerosis has been compared to an iceberg because 90 percent of the disease activity may be hiding under the surface and not visible to the naked ...6 years ago
-
MS Calling has gone home to LLM Calling - I started writing MS Calling exactly a year ago, it seems like it's been so much longer than that, but it really was 12th November 2015. MS Calling: A bit...7 years ago
-
8mos. Post-OP and all is well - The surgery couldn't have gone better than it did. Everything is awesome. No pain, no stiffness, no issues. I know I don't post very often, seemly never it...7 years ago
-
Coming out of the closet with my MS, just a little bit. Sort of. - If you have read my posts, you know that keeping my MS a secret has been a critical goal of mine. Unfortunately, my walking has deteriorated to where I ...7 years ago
-
The Month of May - Every time May 1st comes around, I make another tick in my mind. 3 years. It's been three years since I sat in my neurologists office hoping for a dif...7 years ago
-
-
Sad News - I am not sure how many of you got the news. Muff of KALEIDOSCOPE MUFF has passed away.7 years ago
-
Link to Labs - Some readers have brought to my attention that links to some labs do not work. This is because the site I originally used to post labs is no longer in oper...7 years ago
-
Millennials with MS - “You may never know what results come of your action, but if you do nothing there will be no result.” Mahatma Gandhi We have just graduated and entered t...7 years ago
-
-
Feeling Normal - After my pseudo flare up with old lesions this summer I had an epiphany. If I can handle a fakey flare up (which felt quite real) then why am I so worri...7 years ago
-
TRANSITIONS SUCK! - Well the year is quickly coming to an end and I’ve only posted one blog which was also the case in 2014 when I said that I wanted to start writing again!...7 years ago
-
Cold turkey! - Ok didn't think i had a problem, but i think ive been taken double baclofen meds, taking and forgetting. so now here i am coldturkeying off it lol But does...8 years ago
-
Hurts to share - It's the day before Thanksgiving and I'm sitting in my warm front room on my comfy couch listening to Christmas music while my daughter sleeps in her bed...8 years ago
-
MS breakthrough! - Breakthrough! Breakthrough! We MSers love to hear and read about breakthroughs! This one’s a promising one and I hope it will soon be approved do that we a...8 years ago
-
How do you really inform the uninformed, when they don't care... - I have got a problem. I spend my days keeping myself informed, even listen to CNN in the mornings to see what the uninformed watch, I try to understand the...8 years ago
-
Redefining Discipline - All of a sudden, I’m finding it hard to write about this topic. I am surprised. I guess I feel blocked. For as long as I could remember, I’ve seen myself a...8 years ago
-
Babe, I’m glad you have MS - Wait. What? Ok, well, it is really not the simple. But it is really not that complicated either. Let me explain… I won’t go into too many details because ...8 years ago
-
#ChallengeMS - Every September the MS Society in the UK has a fundraising campaign to raise money for research. This is an important and worthy undertaking - there is no ...8 years ago
-
Reflections of a summer almost past - I know I have posted more recently, but don't know where they have gone! So, I'll start over. A friend just started blogging and I thought maybe that would...8 years ago
-
Knowing your rights as an employee – Part 1 - Knowing your rights as an employee is incredibly important! As the 25thbirthday of the Americans with Disabilities Act (ADA) approaches and as I navigate...8 years ago
-
-
-
Your Most Burning Questions About TOXIC Food Ingredients to AVOID - *The Truth About Toxic Ingredients in * *Your Food* Did you know that there are dangerous and life threatening ingredients that can be found in food items...8 years ago
-
managing a chronic illness and being your own advocate - a couple of weeks ago I wrote some notes about a blog that I wanted to write about managing a chronic illness. Those notes included things like: finding t...8 years ago
-
Fear - I have realized I have a lot of fears. That my fear in so many areas influence my life in HUGE ways. I know I need to combat my fears with faith. That e...8 years ago
-
Food, Drink, Prizes and More - Join us Thursday 4/30! - In an amazing show of support, many people have come together for a fundraiser for us on *Thursday April 30, 2015 at** Smokies Restaurant & Tavern** in Wya...8 years ago
-
Why do you HATE me? - Do you know of someone who dislikes the “Church?” I have heard several people within my lifetime try their hardest to disgrace the Church. When I was young...8 years ago
-
The Head Bobbing Game - I’ve been trying my hardest to write a post on fatigue, given that it is one of my most debilitating symptoms, but, alas, I have been too fatigued. So I s...8 years ago
-
Done with 2014. - Almost a year since I blogged. WTH? Quick self-indulgent catch up from 2014: 1. Bring on February – new job. The best move I’ve made of recent career li...8 years ago
-
Done with 2014. - Almost a year since I blogged. WTH? Quick self-indulgent catch up from 2014: 1. Bring on February – new job. The best move I’ve made of recent career li...8 years ago
-
So the on the coldest night of the year…my legs are burning up! - I can’t sleep and I will pay for this tomorrow as I am dragging myself out of bed to get my boys to school. As a mom, I feel that I deserve sleep…and I am...8 years ago
-
MS: I’m so over it! - I’ve often returned to blogs to find that there are no new posts for long stretches of time and I find myself wondering… what happened? Where are they? I d...9 years ago
-
November is National Family Caregivers Month - When I meet people and they find out I have multiple sclerosis (MS), they often remark at my productive life. I’ll give myself some credit; I’ve done a lot...9 years ago
-
Would It Be Easier If My Disease Was Called Something Else! - I am a little perturbed at the fact that when I say I have Multiple Sclerosis amongst people who actually know what it is that I am looked at lik...9 years ago
-
Summer fun - On a roller coaster this summer. Not a literal one (I hate them, plus I get motion sickness). I started the summer full of ideas. What I would do with my d...9 years ago
-
Flawless Future Powered by Ceramide Caplet Serum.... Try it! - I was recently sent a sample of the Flawless Future Powered by Ceramide Caplet Serum by @ ElizabethArden and +Influenster to try for free! I have somewh...9 years ago
-
Raltegravir – a ‘cure’ for MS? - Professor Julian Gold in Sidney treats people with HIV. He noticed that only one of his patents over the last few decades had MS, and that the disease prog...9 years ago
-
What your staff says about you as a doctor. .. - I had an appointment today with a new doctor. I was hoping she would be my new primary doctor, but I left before ever seeing her and vowed to never go ...9 years ago
-
Mesenchymal Stem Cells - It has been a long time since I last wrote a blog. So much has happened in our daily life; over all things are pretty awesome. The MS slowly progresses tho...9 years ago
-
Not goodbye, just so long. - “O Lord my God, I cried to you for help, and you have healed me.” ~ Psalm 30:2 It’s been just … Continue reading →9 years ago
-
MS and Keeping Calm - Quick tip: I’ve happened upon a great website that provides timed meditations with calming visuals and music. It’s called, of all things, Calm.com. I hig...9 years ago
-
Three Years With Multiple Sclerosis - [image: A selfie of a man (me) in sunglasses] Aren't I a little old to be taking selfies? Probably. But who else is going to do it?Diagnosed with Multiple ...9 years ago
-
Howdy Doody! - Well, it’s been awhile since my last post. It’s been too long. Actively posting seems to help me manage myself better. I’m sure I’ve mentioned this before,...9 years ago
-
SMS - I'm still struggling with the mess this SMS made in my life. It is quite a while since I received it. At the beginning I didn't pay much attention to it, b...9 years ago
-
My New Life Starts - I spent a few weeks in Arizona, then came back to New York to start looking at what clinical trials were going on. I had met a guy in Arizona that I really...9 years ago
-
Taboo to you - BOO! I'm back! - It has been a ridiculously long time since I blogged and I am not going to try to explain why. Not least because I'm not sure why. Today I had a conversati...9 years ago
-
January 2014 New year! - First happy new year to everyone!! I have officially started the doctor change over to TN from NC. Met with a new neuro on the 30th. His name is Dr. Tru...9 years ago
-
The past is in the past - Think of this post like my admission i have a problem. For too long in my life i have not worked hard, at anything, no I’ve just taken the easy option, but...9 years ago
-
Why we need to stay ahead of our doctors! - The most popular post I ever wrote was entitled “‘If the Swank Diet works, why hasn’t my neurologist told me about it?’ (or, Why the Man on a MSion is not ...9 years ago
-
-
Feeling Brave or Reckless….or maybe Nervous - It’s been a day over a week since I’ve taken anything to control my MS. For the past five years, I’ve given myself a daily shot of glatiramer acetate (Copa...9 years ago
-
December 2, 2013 - Just last week, I saw my little Allie improving to the point that I was insanely hopeful that her condition was, perhaps, in some sort of remission. Frid...10 years ago
-
Overheard: kindergarten love edition - "Mom? Do you want to hear something really gross?" "Uh, ok?" "Connor is in love with me. He told me on the bus today." "Hmmm, what did you tell him?" "Th...10 years ago
-
2.5 years since my last post. - Two and a half years since my last post and this one comes out only because someone remembered off of Facebook that I had this and a friend, newly diagnose...10 years ago
-
A Long Time Gone - Holy cow, it HAS been a long time!! I am going to need an industrial strength broom or the Sorcerer's Apprentice with all his many mops and buckets to cle...10 years ago
-
Federal Focus-September 2013 - *Urge Your Members of Congress to Attend a Briefing on Medical Research and Progressive MS* Next Thursday, September 12, the National MS Society in partner...10 years ago
-
MS Marathon: MS Village – Part 2: The Swim - The Night Before You know you are in for a long swim when you pass a herd of elk on the way to the start line. It was about 8:00pm, July 19th and Ray and I...10 years ago
-
JOURNAL PAGES - *Hello Everyone!! I hope you are as well as you can be! I have been following an art journaling group on Facebook. It is Art Journaling with Terri Sprou...10 years ago
-
Medication - A view of my medications as I was getting ready to fill my medicine holder. I think I missed a calling as a pharmacy technician.10 years ago
-
That dreaded phone call... - Jeff here. We haven't done very well at documenting whats been happening. Basically, it's been a no news is good news kinda few months or in the case of t...10 years ago
-
Hope springs eternal - *A few days ago, my family and I went to a conference on MS titled "Is it Me or My MS*?"* Their was a doctor answering questions and informing us on the ...11 years ago
-
Gilenya - Today I started a new medication called Gilenya. This will be my 4th disease modifying medication (but who's counting?) and the cool part is that THIS one...11 years ago
-
Nature, Nurture - I'm going to start off with a breast problem--mine. I have rather large breasts and, because of my age, they hang down on my chest. Four times in the last ...11 years ago
-
USING POSITIVE PSYCHOLOGY TO COPE WITH CHRONIC ILLNESS - Here is an article fightingmsblog@wordpress found worth sharing. I agree! USING POSITIVE PSYCHOLOGY TO COPE WITH CHRONIC ILLNESS.11 years ago
-
My "crash" scene - Well, this serves me right. I can't think how to start. And, oh wow, I wish I'd been writing smaller posts than I usually do, more often, so that there wer...11 years ago
-
MS - A DAY IN THE LIFE - The below diary piece is my effort to show how much work combating a progressive disease can require. It’s not *the* way, it’s just *my* way. This isn’t...11 years ago
-
Got it! - I got the house! Woot woot. I am happy and moved to tears from all the support of my friends and family.11 years ago
-
Logan, 2 years - Today he put a napkin over his mouth and proceeded to examine my teeth to look for cavities. He was being the dentist. Though it’s been 6 months since his ...11 years ago
-
Research Study Update - Chris had his Multiple Sclerosis Research Study appointment today. This is the appointment where they get Chris to do a bunch of tests to determine the pr...11 years ago
-
So how do I keep my interest? - I can keep telling you about my failing body that you probably go through the same things yourself. I've had a recent visit from my physiotherapist. This i...11 years ago
-
I want my leg back plz - Things I think that I don’t like to say: -I want my life back now -I don’t feel like me anymore -How did this even happen? -This is not actually happening ...11 years ago
-
Dr. Payne's Questionnaire - I've been seeing a pain doctor. for about the last year now and she has been of great help to me. I didn't even know they had doctors whose specialty was p...11 years ago
-
She's Baaack (but not staying) - I've been very remiss about posting and writing this blog so I'm just here to say that I needed a break from all this self-reflection; and I still do. ...11 years ago
-
Symptom Awareness??? - Okay, so it's almost March... and as many of you know March is MS Awareness Month! It's a time for us to make Multiple Sclerosis known throughout every cit...11 years ago
-
Snickers the Shoplifter - *I really hope I don’t find Snickers on America’s most wanted. Snickers accompanies Judi, his partner, everywhere. She told me that the other day, when she...11 years ago
-
Still Alive - It has been a very long time since I wrote anything to this blog. I have been venting some on Facebook which I have since realized is not the best place to...11 years ago
-
How to bathe a Bullmastiff and survive - This is Bear he's our 150 lb Bullmastiff. As you can see Bear is no little dog. Bear is just about the perfect dog except for one small thing........11 years ago
-
A Cuddle For Your Stick - I’ve been dreadfully neglectful by not writing any new posts for a while. I started Tysabri in July and have a couple of posts written on that which’ll app...12 years ago
-
The Holistic Trinity - It’s been two years since my last injection. This blasphemous behavior makes me a little embarrassed and nervous to see the man who prescribes the medicine...12 years ago
-
MS Monday 11/28/11: Emotional Changes - Today's topic for MS Monday...Emotional Changes. The other side of the cin from last week's MS Monday post. This part is a pretty prevalent symptom for me....12 years ago
-
the belle of the ball - My eyes snapped open... Lilirosie grumbled softly... She was pressed contentedly against me and I was disturbing her as I twisted around to look at the clock...12 years ago
-
When living life gets in the way of writing about it... - I began writing this blog in March, 2010. It is amazing to me that it has been two years since CCSVI came into my life in November, 2009. I started writi...12 years ago
-
Anyone Home? - Just wondering where all of our awesome writers are??? I miss reading the stories, the poems, the heart felt words to each of us. So. . . if you are out ...12 years ago
-
Wow, I forgot I even had a BLOG! - How sad is that really? :-) My life lately has been tumultuous. I became separated from my husband in May 2011 and have gained a gazillion pounds. I don't ...12 years ago
-
Drawing the line...is the world black & white, or are there shades of grey? - I was involved in a conversation recently on Facebook. The topic "Monkeys found in Oregon" was an article about how researchers in Oregon found a link bet...12 years ago
-
-
Happy World MS Day! - So today is World MS Day! and so I feel it's important to say a little something. WE NEED A CURE!!! That's just all there is to it. MS affects so many peop...12 years ago
-
Supplements: A Cautionary Tale - When I heard the news, I was speechless. How could basic supplements cause this? About 80 percent of people with multiple sclerosis take vitamins and dieta...12 years ago
-
ct fights MS! - Shared via Tweetcaster'>Tweet from Tweetcaster Published with Blogger-droid v1.6.712 years ago
-
Gadzooks - Although I did not realize it had come and gone until 11:59pm, April 14 was my second tattaversary! Jeepers, how time flies. It has been at least six month...12 years ago
-
"ARE YOU SURE IT'S MS"? - All this time taking therapy, living life, being happy, seemingly satisfied with my diagnosis. Symptoms worsen and I can't help but have that thought "ARE ...12 years ago
-
Healing is Available - As I wrap my mind around this whole MS thing I am reminded of my God-mother. A few years ago she had gone in for a routine procedure and ended up acquiring...12 years ago
-
2011 - another year already... - Times flies when you are having fun, huh? Or even when you are not I guess....it seems as we get older the time just starts to fly by faster and faster. I ...12 years ago
-
Its the Most ??? Time of the Year. - The "holidays"...not certain the true definition, but now, having my disease and being on the "older" side of 40, I am a certified "Holiday Curmudgeon". I ...13 years ago
-
-
Well, it is about that time.......... - The time when many of you are beginning to think about the 5th annual(or is it the 6th?) MS Crop 4 Hope and I have had numerous emails inquiring about it f...13 years ago
-
Woven - A community of twisted fibres reaching out, winding around one another to form something greater. I am woven, one of many. The calm of unity ignites despit...13 years ago
-
-
It’s a Jungle Out There - My legs are sore; my back is stiff, my arms ache, my fingernails are permanently dirty, my hands are covered in little cuts. But, to the best of my knowle...13 years ago
-
How does this speak to you? - Just a quick post to share a picture of a sculpture done by Cathy Aten, an artist with MS. When I saw this it just seemed to call to me and I wanted to pa...13 years ago
-
MS SCARS 2 STARS AND A DOZEN EGGS - On average our MS Self Help Group Meeting has about 12 people in attendance, which is the typical size of most groups. Like a dozen eggs. The members usual...13 years ago
-
-
So sorry - I am very sorry for those of you who have been waiting to hear. I am a tax preparer and as you know April 15 is the deadline so I have been swamped. Anytah...13 years ago
-
And here we go once more - I know that it has been a while since my last posting. Since then, I have been keeping a "personal mobility and health diary" and I can only recommend that...13 years ago
-
For Auld Lang Syne, My Dear - As the year draws to a close, I don't think anything says it better than the Bard himself. *Auld Lang Syne by Robert Burns* For auld lang syne, my dear, For...13 years ago
-
MS? Who cares! - MS? Pssssh. MS is just letters for me today. They could mean anything. My Song. Many Saved. My Sweet. Pick one! Granted, I lost tuesday again. I went to be...14 years ago
-
Keep up the fundraising... - The MS Walk in Kemah is less than a month away and we're still $3,230.00 short of meeting our $6,000.00 goal! Let's really work hard these last couple of w...14 years ago
-
Swimming.... - So, stooopid MS interrupted my swim for the first time! I should be excited that this is the first time in so many swims... But, on my last round of laps m...14 years ago
-
Kids - If I have any regret about my illness, it is not what it has done to me or my life, rather the devastating impact it has had upon my kid's. Now don't get m...14 years ago
-
Terry Wahls, MD also used nutrition to recover from SPMS - I just received these audio CD's yesterday 07-21-09. There are 6 of them so it will take me some time to grasp the information, but so far it is fascinatin...14 years ago
-
Need Sleep! - This weekend was the celebration of our country's independence. My family had there annual picnic a day early so that we could go to other picnics tht we w...14 years ago
-
Go to the MSBPodcast wiki intead. - Enough of this mollycoddling... :-) I'm stopping all further blog and podcast posting and directing you to go to the MSBPodcast wiki instead. Click here f...14 years ago
-
MS Walk 2009 - Wow, time is flying! The walk was a few weeks ago, I cannot believe that it has been that long already. Like every year, the sky was dark and gloomy..I hon...14 years ago
-
I'm Still blogging......... - Just not on the MS blog. I am continuing to blog on my MidWestHorse Blog. I'm not abandoning this completely, but I am concentrating my time on my other bl...15 years ago
-
Work and the ADA - It was over a year ago I was forced out of my position and told I was being put in a different position that "better accomodated" my work hours. OK that's ...18 years ago
-
-
-
-
-
-
-
-
-
-
-
-
MS Bloggers N-S
-
Evobrutinib is no better than teriflunomide - The EVOLUTION phase 3 clinical trials showed evobrutinib did not meet its primary endpoint of annualized relapse rate for up to 156 weeks compared to or...3 days ago
-
The real issue.. - Its frustrating that we can’t be truthful. That we spend so much time seeking out ways to label ourselves in the hopes that others will understand us. Its ...1 week ago
-
Segenap Jenis Judi Permainan Online Aci Pastinya Menyodorkan Melimpah Margin - Sebelum kami ingin menguakan diskusi menyinggung permainan on-line asal pembahasan itupun. Apakah sobat diyakini paham maksud dari taruhan on-line inipun...1 month ago
-
Helllooo, Belgium - Usually, I use Google Analytics to discover that three people a day use my blog to see if 1,000 thread count sheets are worthwhile or if Rudyard Kipling wr...3 months ago
-
This feed has moved and will be deleted soon. Please update your subscription now. - The publisher is using a new address for their RSS feed. Please update your feed reader to use this new URL: *http://www.allthenerve.com/rss.xml*6 months ago
-
On Truth - The truth is almost always somewhere in the middle. Two opponents promoting their own version of the truth… it’s all about perspective. And somewhere in...1 year ago
-
Thumbs (a glimmer) - As the ancient Chinese curse apparently has it, “may you live in interesting times”. While sounding superficially like a blessing, of course it’s nothing...1 year ago
-
The day after the road trip to the reunion with dear friends - I am following up a day of massive sensory overload and hypothermia with a morning resting on my bed with my lower limbs extended but slightly flexed kn...1 year ago
-
Whispering Light - In the wee hours, merelyminutes before dawn,morning’s darkness casts awhispering light upon theeastern horizon. The pinkish glow begins torise, illuminatin...1 year ago
-
Lifestyle Modifications……What Does That Mean? - Yolanda, a pharmacist who has been diagnosed with MS and blogs at The Patient RPh(Pharmacist) has written this brilliant guest post: As pharmacists, we l...2 years ago
-
MSAA Published A Nice Article Which Includes ME - I seem to blog when I want to brag 😁. The Multiple Sclerosis Association of America wrote the following article I am doing...2 years ago
-
Ruined Meals - Of course I misspeak — celebrity names, band names, the occasional place wherein time becomes a vague concept… but sweet ladybird lord, how can I know anym...2 years ago
-
YEG MS Ep. 62, “Dr. Gretchen Hawley, Volume 2” - In this episode of the YEG MS podcast I was excited at the opportunity to interview Dr. Gretchen Hawley for the second time! From her website, “I began s...2 years ago
-
On The Inside Looking Out - I feel like I spend so much of my life on the inside looking out. I sit here in these three rooms in our little apartment we call our home and I look out o...3 years ago
-
-
What I have learned in the COVID-19 Pandemic and having MS - For us here in Ontario Canada, the pandemic of COVID-19, the lock down started for all communities and its residence in May 2020, for us here. When the w...3 years ago
-
RaffleConfirm - Longhaulpaul Updates Your ticket purchase has been confirmed! You will see MS5000@MSVN.org as the recipient in your PayPal account. This lets the charity...3 years ago
-
What Still Works and Does Not - This bleak pandemic, unsettling and quite deadly, claims some positives. Power grids prevail. So do phones, internet, mail, police and fire crews. For...3 years ago
-
Child's Play - Hello friends! I hope you’re safe and well. On a day like today, with the sun shining bright in a cloudless sky and nature bursting with promise, it’s eas...3 years ago
-
Adelaide Plains Poets competition 2020 - The theme of our poetry competition this year is the obvious theme for the year 2020 - and it is Vision, 2020 vision, get it? These are the details and the...3 years ago
-
Minyak telon bukan hanya untuk bayi. Minyak aromatik hanyalah... - Minyak telon bukan hanya untuk bayi. Minyak aromatik hanyalah minyak mineral dengan sedikit aroma, yang menjadikannya pelembab kulit yang baik untuk ora...3 years ago
-
Blame it on the FAME - I met him as a child I remember the mustache and his name He played more of a part in my life than he could imagine He never knew my name Or probably ...4 years ago
-
100 Words - 47. Ballooning I changed into my flying suit and stepped into the gondola. I’d never done anything like this before, but the Professor said there was nothi...4 years ago
-
Days 5-9…sort of - So, I hung on well until needing to do day 9. Day 9 was this past Saturday. I wound up being too tired to do it, so I picked up day 9 today. I am having ...4 years ago
-
New Lesion - Journey from 11/2/18 to 3/1/19 - On November 2, 2018, I awoke with the feeling that my forefinger and thumb had super glue on them - you know that feeling when you get super glue on your f...4 years ago
-
Thankful today and every day - Thanksgiving is my favorite holiday. Why? For one thing, the whole day is centered around food, friends, and family. That’s obvious. It’s also centered a...5 years ago
-
Armistice and Irony by Josephine A. Baker - My Grammy's Poem: A true story Armistice - And Irony I can see them yet, as they marched away,So debonair, so brave, so gay!I can see them yet, as they tur...5 years ago
-
-
Sept 15: A Year of Lost Identity, Part 1 - One of life’s more turbulent waves that threatened to topple me (see In search of solid ground for reference) happened a year ago today, Sept 15 2016. A...6 years ago
-
-
If I'm not dying then what the hell is this? - After my latest adventure, commonly known as the shoulder debacle, I was lucky enough to be accepted into the hospice program. When I first got home, I c...6 years ago
-
Barefoot running - While I really like the idea of barefoot running I much prefer (and need) to wear shoes. I do run in zero-drop shoes to get as close as I can to actual bar...6 years ago
-
The Winds of March - It was a day in March three years ago that “Needle Fatigue” made its debut. Not much longer after that, the Fairy appeared. Today, March has turned into A...6 years ago
-
Our Ellie - We loved you. We still do. You are everywhere in this too quiet house- and absent. Thank you swee...6 years ago
-
Pip's Blog has moved! - *Please visit our new website and Pip's blog here:* *http://www.bmstc.org/blog*6 years ago
-
Put On A Happy Face - *Everyone is so excited about the Spring-type weather we are having. I wish I could be, but MS and warm weather do NOT go together.* *Wearing shorts and ...6 years ago
-
2016, The year I can’t wait to see end. - Anyway, yes, it's true. I really cannot wait for this year to be over. With the U.S. election finally being over, I expect I'm not the only one.7 years ago
-
part iv: to Dingle (alternate title: poop) - Okay, let me try to get this one out today... Apparently, after consultation with the journal I'm forgetting to consult, I forgot to mention a trip to ...7 years ago
-
Getting a Grip on Multiple Sclerosis - So another year is more than halfway gone and I am beginning to finally get a grip on this thing called “Multiple Sclerosis.” It is a disease that takes u...7 years ago
-
Compare ED Drugs to Erectile Dysfunction Natural Remedies - Who Has the Upper Edge? - Should you compare ED drugs to be able to natural remedies, you will see why many people are switching to healthy health to cure their impotence. In this...7 years ago
-
A Dog-related Quiz (humour, not serious) - I've been neglecting this little blog, I don't really know why. Well I do actually, this is just one blog amongst many, and I also have a life that has not...7 years ago
-
-
-
-
The gossip - Well we all have that family member who finds the need To gossip , lie and make things up Grow up Find something to do And it's not funny my X beat me up w...8 years ago
-
-
Butternut Squash Soup - *By: Esther Vasa* Butternut Squash SoupYou can find a million butternut squash soup recipes out on the internet and then many reasons why this soup is the ...8 years ago
-
Warrior Dash – I AM a Warrior - I very reluctantly ran my first Warrior Dash last weekend. I’ve never had a strong desire to run around in the mud. But when a friend asked me to join her ...8 years ago
-
Everybody Needs to Feel Special - My husband and I were invited to attend "Special Persons Breakfast" at one of my grandsons' pre-schools this morning. I've been thinking about feeling "s...8 years ago
-
For Current Information - As you can see, we have not taken the time to update this blog as we might have wanted. For a more current snapshot of what is happening at Restoration Far...8 years ago
-
Choosing Happiness - Today, March 20, 2015, is the third annual International Day of Happiness, as decreed in a proclamation from the United Nations in 2011. On the surface, ...8 years ago
-
Spoke to soon :( - I’m tired and want t sleep but It seems both kids are coming down with something :( I picked my daughter up from school today and she seemed to have a sore...9 years ago
-
What's That Smell? Whoops My Brain Farted! - Hi! (waves sheepishly) remember me? Its ok if you don’t because a lot of the time I don’t either. I am certainly not going to start this blog post off by a...9 years ago
-
Some thoughts on having an MRI scan - I had another MRI scan recently and I thought it might be an idea to put some thoughts down about what it is and what the experience is like being inside ...9 years ago
-
It's a Balancing Act! - Hi all I wanted to let you know that I am starting a new blog. She is Running Down a Dream has served me well for the last five years. As I move forward ...9 years ago
-
My Birth Story is In a Book!!! - Chapter 14: Jennifer and Michael (Alison and Greg) ~ How much longer can this go on? ~ Excerpt: Jennifer did not sleep that night (second night of labour), ...9 years ago
-
New body, please? - Excuse me sir, could you direct me to correct aisle for new bodies? What’s that, you’re running low at the moment? Oh, just on the younger, hot looking mod...9 years ago
-
Life Stuff: Real talk? - Last week I found myself sitting in a chair at the hairdressers. My mom had finally convinced me to get my hair cut because it was "too long". I've been ro...9 years ago
-
It's flu season again! - Well here we are all the way back around the calendar to flu season again! The flu is hitting the Houston area particularly hard this year with many repor...9 years ago
-
A new blog - MS Nomad - I decided to set up a new blog, and have forgotten to post it here. You can now follow me at MS Nomad. I also have a Facebook page for MS Nomad. Please che...10 years ago
-
Earthquake Preparations - One of the first things to go bad in an earthquake will be your windows. This poses all kinds of problems for us. As most of us do, we have windows in ou...10 years ago
-
A Halloween Wedding… - Halloween Wedding My very geeky, quirky, strange friend Bryan, is getting married. He found an equally tattooed, cool, beautifully strange woman on a websi...10 years ago
-
Stage One Complete - I finally got around to switching out the theme (that is the background) of this blog. Stage one (or is it post one?) on make-overs is complete. Like othe...10 years ago
-
Brain Temporarily Out of Order - I just wanted to formally let everyone know that I am currently working on finishing my book. In order to get it ready for publishing, I need to put all of...10 years ago
-
So much has been going on! - Well you all should be happy to know that I am still alive despite my lack of blogging. I really have no good excuse besides the fact that things have been...10 years ago
-
I think this may be the end... - ...of my blog. I am not sure that I am getting readers, and making any difference. I am getting roughly 5 viewers a day, but no one leaves a comment or em...10 years ago
-
Diet Update - Hi everyone, it's Niko! Tomorrow will mark my third week since I went to see the holistic nutritionist. I've noticed some changes in me and I will also adm...10 years ago
-
Oh where, oh where, has my blogging gone? - My last post (before this one)….October 1st. My current state…..Marvelous, Wonderful, Superfragilisticexpealodocious!! Since refusing to give MS attention ...10 years ago
-
Flare up or not? - About 2 1/2 weeks ago I stood up and had a rather painful twinge in my lower back/pelvis. If I stood up straight or moved a certain way it would spasm. I...10 years ago
-
Spindles - When you sleep I curl into your hand wrap myself into your palm and rest. Holding my breath I twist against your ribs find the rhythm of your breath fight a...10 years ago
-
I’ve been blocked! - Facebook, you can love it or hate it, or maybe a little of each. It’s a great way to reconnect with those who we lost touch with over the years. It’s a fun...11 years ago
-
SSDI: approved - After learning my Social Security disability claim has been sent off for a quality assurance review, I stopped rushing to the mailbox. Then, suddenly, a ch...11 years ago
-
Recap and Update - I thought that it was about time I did a recap of the blog, and an update on what has been going on with me and my activities. Overcoming Life’s Pitfalls...11 years ago
-
Let's try this again - Okay, so I've had a lot going in the past few months, and blogging as taken a back seat. But I'm going to try to do better. Now that the wedding is out of ...11 years ago
-
New Article! - NEW Life after the walk has been interesting. So much to talk about but not sure how to go about saying it all. For now I will leave you with this article ...11 years ago
-
Almost forgot I have a chronic incurable disease. - January 2012 Some may have noticed that I've not posted in a very long time and I feel a bit guilty about that since I promised (myself anyway) that I'd do...11 years ago
-
-
Panic - Noooooooooooo and Breathe............... - Ok, it has been incredibly busy and alot of stuff that does need doing. I won't be pressing any Thankfully I can use breathe to keep PANIC at bay12 years ago
-
Why - Lately I'm struggling with the why's in life and I think I know what's to blame. For the better part of 2 months now my daughter has been incessantly singi...12 years ago
-
Feminine Wiles or Liar, Liar, Pants on Fire? - So today, I was happily meandering along, reading some funny articles, enjoying a cup of coffee…and it hit me. Came right out of left field and smac...12 years ago
-
-
Come early tomorrow, the prisoners get here around noon - This was the direction I was given this morning when leaving Bellevue Hospital’s infusion clinic. Since Bellevue is the only public hospital in the NYC – ...12 years ago
-
How do you deal with life shattering news, you have MS? - Someone asked me the other day how I felt when I received the life shattering news that I had been diagnosed with MS, so I thought I’d share my thoughts an...12 years ago
-
"stay classy pennsylvania" - Animal Rescue or High School? - first, please bare with my jumbled, rushed thoughts and ocassional misspellings as with my MS my mind does not usually process things accurately these days...12 years ago
-
day ?? of Copaxone… - = D YAAAAY FOR ME!!! I am thrilled b/c of my amazingly patient boyfriend who waits for me ALWAYS till I’m ready…. I’m braver when i have a drink, lol. OR f...12 years ago
-
Hello and Sorry - I know everyone was looking forward to a March show but unfortunately, I fell ill and was in the hospital. Let me tell you, there's no bigger upset between...12 years ago
-
Moving to Seattle for Treatment - Long story short thats where one of the three VA Multiple Sclerosis clinics are and the one that Im choosing. More info to come as I try to figure this who...12 years ago
-
Unpleasant reminder - Been home sick with a bad cold for the last few days. As anyone with MS can attest, common illnesses like a cold are that much worse because they worsen e...12 years ago
-
Its Been a Helluva Month - So, its been a while. Theres been a shit-ton of stuff going on. My kids gma (my ex's mom) was pronounced terminal so I spent my med money to get them down ...13 years ago
-
3 months post angioplasty - *Time has certainly flown for me this past 3 months. I actually have my 3 month mark in 4 days. I'm having a quiet morning so I thought I would post a cou...13 years ago
-
2 years and going strong!!! - Hello! I am sitting here at my computer reading what I went through 2 years ago and I still am happy to say that it was all worth it! MS really can be horr...13 years ago
-
Yay, yay, four weeks from today - Four weeks from today, I will go in for my Liberation Treatment a/k/a venous angioplasty for the condition known as CCSVI. God bless the brave doctors and ...13 years ago
-
Copaxone anniversary - Today is my second anniversary on Copaxone. I have not missed a dose in these two years and I have been so fortunate to not have any relapses. Woohoo! Whil...13 years ago
-
"MS" Beyond the Diagnosis! (Part 1) - I treated and taught many patients with Multiple Sclerosis before being diagnosed myself in 2005. My first experience with an MS patient was my defining m...13 years ago
-
Is this the chair for our garden? - After looking forever, I'm crossing my fingers that this chair will work for our garden. It looks cute in the picture and it's $59 at World Market so the p...13 years ago
-
What’s Next? - Exiting the subway and walking up the steps to the crossroads of Clark and Division in Chicago, I finally felt for the first time in over half a year that ...13 years ago
-
The Idea - My name is Adele O'Sullivan, I am 46 years old and I have primary progressive Multiple Sclerosis. I was diagnosed eight years ago, and when I got my final d...13 years ago
-
why do all good things come to an end....? - I'm moving my blog. If you're looking for me, then you should now head to swisslet.com I've had a pretty good run on here. I started making my first ten...14 years ago
-
Half Marathon - It’s been a while since I updated this blog. Much has happened in my life. Before I start, let me say that my MS has been stable, no exacerbations. I stil...14 years ago
-
therideproject.com - Big News! – therideproject.com is ready for your viewing pleasure. Eventually, you will be redirected to the new blog when you visit this page but for now,...14 years ago
-
Charle’s Podcast to raise MS Awareness - Charles, an adult who has battle MS since he was 16, started a podcast, MSB Podcast, as a way to raising awareness about MS for youth. Since the start of h...14 years ago
-
Deeply Disturbing - I can't begin to pretend I know what is going through someone's mind when they commit suicide. How can anything be so bad that is a person's only solution?...14 years ago
-
Miss Me? - I've missed y'all! Blogger and life/time problems, but nothing serious!! If I've successfully fixed the Blogger problems look for a post in the next day or...14 years ago
-
Wednesday - I recently posted something a little negative about MS at another website. I was having a rotten day. My legs hurt, had bad cog fog and the fatigue was ove...14 years ago
-
What have Leprosy, tuberculosis, psoriasis, type 1 diabetes and MS in common? - As strange as it might sound. Leprosy, tuberculosis, psoriasis, type 1 diabetes and MS might have one common fact — clofazimine. Clofazimine has been on th...14 years ago
-
Happy Birthday Shaun! - Today December 1st is my sons birthday. I wish I could see him but I’m not sure where he is. Maybe later. I would post a picture of him but the last pictur...15 years ago
-
Horseback Riding - A friend suggested I try horseback riding. There are places that use horseback riding as therapy for MS. It helps with balance and muscle control. I'm goin...15 years ago
-
-
Event horizon - It seems like my world is hovering right on the event horizon of a large black hole. My life- my little existence- is moving as fast as it ever has. One em...15 years ago
-
-
-
-
-
-
-
-
-
MS Bloggers T-Z
-
Pain, pain go away....... - Pain, pain go away........and don't come back another day 😢 I don't like writing a grumpy post but I needed to vent and just get it off my chest. I'm rea...3 hours ago
-
Come Along - Come along with Me Sign Your Name to Europa Clipper's Message in a Bottle -> Earth’s first mission to conduct detailed reconnaissance of Jupiter’s moo...11 hours ago
-
Choosing the Right Document Management Software for Your Business - Document management program helps your company streamline processes, automate workflows and manage paperwork in compliance with regulating standards. If yo...3 days ago
-
2023 Tripping On Air Ultimate Holiday Gift Guide & Giveaways - 2023 Tripping On Air Holiday Gift Guide is here and it's loaded with giveaways, because the right present can make MS suck a little less. The post 2023 ...2 weeks ago
-
A Little Lesson in Portuguese - When new medical news reminds you of your childhood On 1/1/23 I had three resolutions. First, I wanted to get a new book published. Done. (Shameless self-p...2 weeks ago
-
Louise Penny's Still Life: - *Still Life*: A Chief Inspector Gamache Novel (A Chief Inspector Gamache Mystery by Louise Penny3 weeks ago
-
New World MS Day campaign on diagnosis - We are thrilled to announce that the new theme for World MS Day 2024-2025 will be Diagnosis. The name of the campaign will be My MS Diagnosis and the tag...4 weeks ago
-
-
Worthy of Note - The last twelve weeks have been strange. My mother discovered that her aortic valve was failing and that, without open heart surgery to replace it, she lik...8 months ago
-
We Just Keep Growing Older Together - Years ago, I began this blog with a thought towards gaining wisdom by being able to look back on years of memories in the somewhat vain hope of seeing a th...8 months ago
-
-
-
My MS story - I was officially diagnosed with multiple sclerosis on March 3rd, 2003 at the age of 19. I've had signs and symptoms as early as the age of 13. Being a t...2 years ago
-
Please Check On Your Clergy And Worship Leaders...We Are Not OK. - This is the conversation that I wish would happen on a regular basis these days, well, since mid-March: House of Worship Member: "Hey, how are you?" Cl...3 years ago
-
Life During Coronatime - It's been a while. I'm fortunate that no one in my house is sick. And that I am able to work from my home. I'm choosing to see this time as very meditativ...3 years ago
-
Pretzel Bites: What to Read on International Women’s Day 2019, Part 2 - **Please note: I cropped down the cover for “Fire Road: A Memoir of Hope,” as I was pretty sure Facebook would take it down. It is about...4 years ago
-
Heaven or hell? - We seek him here, we seek him there, Those Frenchies seek him everywhere. Is he in heaven?—Is he in hell? That demmed, elusive Pimpernel. ― Baroness Emmu...4 years ago
-
New Year’s Eve Through MS Eyes - *(I first published this essay back in 2015, and it’s become my New Year’s tradition to post it again every January 1. I think the sentiments expressed can...4 years ago
-
It's mostly my own fault - I took a long hard look in the mirror and finally I could see everything. I could see everything... Every fiber in my body wanted me to look away- I couldn'...5 years ago
-
The drugs don't work. - I woke at 3 am like I do every God-forsaken morning. I am kidding. I like being up at this hour. I like singing on my ukulele as the sun rises. I was looki...5 years ago
-
A New Phase, A New Focus - I had planned to retire this blog. There have been changes, but I didn’t think I’d have much to talk about. My MS has transitioned from relapsing-remitti...5 years ago
-
The C Word - No not that one. Nor clickbait neither. Cured. Mr A has said my cancer is cured. Now there is a proper C word for you. Of course I still have the little ma...5 years ago
-
signs of being outside - 3/4/2018 11:31 AM Well, this is just a picture proving that I was outside today. I had to stand up to take this picture because for whatever reason, whe...5 years ago
-
Plans & Ports - Hey there, patient readers. I know I've been MIA once again for a little stretch. I'm here today to give a quick update. I've hinted before about creating ...5 years ago
-
Finally, a post! - Wow, it has been a while. To sum up: I still have MS. Which, in a word, sucks. I will spare you the litany of symptoms, but "suck" covers it quite well. W...6 years ago
-
What is really means to THRIVE in DENIAL… - I know its been a while since I’ve taken the time to write and share my thoughts. I hope you can appreciate the fact that I’ve been living MY life MY way –...6 years ago
-
#thanksliving - It’s a fortnight since we got back from a “holiday of a lifetime” – long haul flights, theme parks, cruise ships and Caribbean islands. It was long planne...6 years ago
-
Woof, meow, tweet…the benefits of having pets in our MS life - Dog, cat, chinchilla, hamster, ferret, fish, bearded dragon, parakeet, pig, monkey – whatever your choice, pets really make us feel good, better even, as w...6 years ago
-
-
Guess Who's the Worldwide MS Fashion Icon? (Yep, ME!) - Sound the trumpets: I have glorious news to share!!! I've recently been named named myself an *the *MS FASHION ICON, thanks to a brand-new cooling vest. I...7 years ago
-
Still alive ... - [image: hp] ZZZ xxxxxx [+/-] show/hide the rest of this post Technorati Tags:Gas | Swimming | Karate | Children | Plumbing7 years ago
-
I've Moved! Well at least my blog has - I'm so excited. I have been selected to be a blogger on the Chicago Tribune sponsored blog site Chicago Now. You can now read my stories, ideas and general...7 years ago
-
+6 Year Post-HSCT and Home Free! - Happy start to 2016, everyone! Some events in life hold more significance than others. For me, this includes December 28, 2009, my stem cell transplantati...7 years ago
-
Who gets Multiple Sclerosis - Who gets Multiple Sclerosis Fifty years ago Multiple Sclerosis was virtually unheard of. Today, there are approximately 2.5 million people worldwide affl...8 years ago
-
-
BALTIMORE, THE CITY THAT... - *APRIL 30, 2015* *THIS BLOG WAS STARTED TO TALK ABOUT MY STRUGGLES WITH MS…AND ALL THAT I LOVE. THE PEOPLE THAT SUPPORT ME AND CONTINUE TO INSPIRE ME ON ...8 years ago
-
Winter 2015 Training Plan - I took quite a bit of time to put together my winter training schedule. I've developed a new role with my friends and training partners - that of trainer! ...8 years ago
-
Yoga Diary – Runner’s Lunge “the asana treasure waiting to be discovered” - In an article published in Yoga International, Luke Ketterhagen described banarasana (one of the names given to the Lunge pose) as “an asana treasure waiti...9 years ago
-
What My Bike Has Taught Me About White Privilege - Originally posted on A Little More Sauce: The phrase “white privilege” is one that rubs a lot of white people the wrong way. It can trigger something in th...9 years ago
-
Stories and testimony - Ugh hubby says when someone asks how im doing I shouldn't go into this long story. Well its not a story its my testimony I told him. I have come so far t...9 years ago
-
What We've Got Here is Failure of Humility - This is a heartbreaking story. Erick Munoz wants to see his wife's wish fulfilled this holiday season, but it's one that carries ethical and legal challe...9 years ago
-
Merry Christmas - Merry Christmas!!! May you have a very Merry Christmas and a Happy New Year! This is our granddaughter Hannah who is now three. She is so lookin...9 years ago
-
MS Has Made an Appearance - Prior to about two months ago, MS was in my life, but it was easier to live with. I had many of the usual symptoms: difficulty with heat, headaches, some ...10 years ago
-
Everything is going to be alright - Life is made up of many little moments. Some so small, that we might not appreciate them if we don't slow down and reflect on them. Usually the moments t...10 years ago
-
-
Switching to Gilenya - Tim has been on Tysabri for over 3 years now. He really likes how Tysabri has helped him maintain or improve his abilities, but he has become worried abo...10 years ago
-
One Who Flew Into the Cuckoo’s Nest - Last Saturday was my snapping point. I had been inside Grant Searcey’s studio, enveloped in cool air conditioning, when he received a text from my wife ask...10 years ago
-
The Beginning of a New World... - Ten months... WOW! Has life been a roller coaster ride... I mean, Life is always a roller coaster ride, IF one really stops and analyzes every twist and tu...10 years ago
-
-
The Assholes and the damage i've done - well, it has been tough on me... which means it been tough on my family. i never really take in to consideration how my health affects them (probably beca...10 years ago
-
Announcing. . . - Hello old and faithful wibsite friends! It is not completely ironed out yet, but I think I have dealt with enough of the wrinkles to let you know that my n...10 years ago
-
Infusion # 31 - #31 decorated and done. Happy Holidays to all you MSers – Let’s unwrap a cure in 2013!10 years ago
-
Here on the Eve of Destruction - **pulls out a box full of fresh tissues** We are all going to die this today. The Mayans said so and while the Mayans had no idea of what life would be lik...10 years ago
-
New neuro: same old symptoms - Saw my new brain doctor. He's more personable and communicative than my previous experience of neuros. In fairness, overall he said much the same facts as ...11 years ago
-
-
Me, the Overachiever - A funny thing happened one Saturday morning a couple of weeks ago. Well, not so funny. I was in the ER, being diagnosed with a bilateral pulmonary embolism...11 years ago
-
My "crash" scene - Well, this serves me right. I can't think how to start. And, oh wow, I wish I'd been writing smaller posts than I usually do, more often, so that there wer...11 years ago
-
What the Walrus said. - Life has become increasingly difficult as my independence is eroded away and I’m at the point where I’m putting off going to bed because I dread having to...11 years ago
-
Menu Planning 101 - Meal planning sounds like such a simple, straight-forward concept. You sit down, you figure out what you're going to fix for the next week or so, make a s...11 years ago
-
Appreciation - Roger Cawiezell Jun 4 (1 day ago) to Wheelchair Marc, you are one great writer and are even better at timing you message. My MS mirrors yours. Although ...11 years ago
-
Starting a new chapter - It's June. YAY! Ok, perhaps a bit too much but still..... Time for a huge update. I have left Georgia. I got tired of not being able to find real work...11 years ago
-
lots of things have been happening - Life, for one. I don’t often want to talk about my MS, let alone blog about it, anymore. There are too many non-MS things occupying my mind and my time. An...11 years ago
-
Multiple Sclerosis Mylein and Halting Enzyme Can Slow MS in Mice - I recently came across the following information about more recent research about Multiple Sclerosis mylein, that there is an enzyme that when reduced can...11 years ago
-
Earth-day 2012 and the sorrow of Earth’s changing face - “The last word in ignorance is the man who says of an animal or plant, “What good is it?” If the land mechanism as a whole is good, then every part is good...11 years ago
-
I'm Blogging Again... - Please visit me at my new blog... http://4mylifefitness.wordpress.com/ Where I talk about my health and fitness and life with my crazy kiddos and loveable...11 years ago
-
I'm Blogging Again... - Please visit me at my new blog... *http://4mylifefitness.wordpress.com/* Where I talk about my health and fitness and life with my crazy kiddos and loveab...11 years ago
-
I hate emotions - Why do I have to wish stupid things, like walking normally at parties? My walker is just too clunky to get around at parties and then I just always need th...11 years ago
-
magnesium, forum, vacation - I started adding more magnesium into my supplements, so I have been taking 3 400 mg a day. it seems to help the pain and numbness a lot. Still though, I am...11 years ago
-
-
What is LIFE? - L: Living breathing. I: In terror of things like this. V : Very hard and filled with what may be called life long situations. E : Every step you to and ev...12 years ago
-
-
A little bit of nothing - I suppose as life plods on as normal I find I have very little to write about. A boring blog now I suppose but I find it kind of therapeutic to write from ...12 years ago
-
Saturday night........ - I totally LOVE that cat...& yes, that is exactly how they think!! My rn call...12 years ago
-
Rose - My friend, who identifies herself as my "adopted daughter," sent this to me. I'm not sure if she is telling me I am old but not over, or if she just likes ...12 years ago
-
10.1.11 - Phish concert for Irene recovery & stem cell treatment..can it work? - On September 14th, Jamie and I went to the Phish concert, A Benefit for Vermont Flood Recovery. I'm not a huge Phish fan - meaning that I like their music ...12 years ago
-
Does your MS create constraint or motivation? - Many years back, I thought to myself: If I ever have trouble walking, I'll do everything I possibly can to get better. I remember that I was watching som...12 years ago
-
Western Painted Turtle-chrysemys picta belli - like the turtle, I am drawn to the waters fast rushing to my fate and hoping to reach home a sanctuary where we all long to rest in the ebbing pools quiet sh...12 years ago
-
ONE YEAR ANGIOVERSARY :) - WOW!! Hard to believe it was a year ago today that I was waiting patiently(?) to see Dr. Martinov in the Tokuda Hospital in Sofia Bulgaria! Little did I k...12 years ago
-
-
I Have the Best Teenage Daughter - My daughter wrote me a poem a few weeks ago. Since then I think about the poem at least once a day, most days more. There are parts of her poem, and simple...12 years ago
-
Baby Season - I miss my little furry friends. It's baby season and I'm feeling it. Here is Truman from last year. I really loved that little beast and hope he is off in ...12 years ago
-
AZ Doppler, Now treating for CCSVI - *Hello Again Everyone, Its been awhile, and I feel terrible that I have not been able to refer you to anyone, since AZ Heart stopped treating. * *But now I...12 years ago
-
One Year, What a Difference - Hard to believe it has only been a year. So much has changed in my and many MSers lives. We have had the fortune of Avis Favaro reporting on Dr. Zamboni's ...13 years ago
-
This is my life... - had a book signing yesterday and I am one of the keynote speakers for a Women's Empowerment Luncheon today. I will be reading a passage from my book "Sins...13 years ago
-
Three months and counting... - Time has slowed since my treatment in July. I've battled back-to-back bladder infections (thankfully halted by my neurologist's prescription for a daily an...13 years ago
-
Just riding the wave. . . - No earth shattering news to report. Things remain on the status quo. Yesterday, I was having a dead foot. I can always tell when one day is a little worse ...13 years ago
-
Yes, I am perky despite everything. Why? Because I'm alive. - *It was brought to my attention recently that I'm always very chipper and don't talk a lot about having MS. I think it's important to share what it's real...13 years ago
-
New Hope - I’d like to share this news recently reported from Tel Aviv University about stem cell research aimed at finding a cure for MS. The Israelis have been ver...14 years ago
-
Episode 2, Season 1 - It's been an odd time. 14 days into taking LDN and MS is really reminding me who's boss. My left foot and lower leg are all but useless and I am so, so exh...14 years ago
-
A new dawn - So, I'm taking a little break from this MS blog to work on a new blog for a digital media class. Check out my awesome design work and vast knowledge about ...14 years ago
-
New Blog! - I have a new Blog. It's for a new journey I've not long started. You can find it *here*. Bye!14 years ago
-
Better late than never. - Apologies for the delay in updating this but I've been feeling kind of poo recently. It started off as flu -like symptoms (prob from the Rebif) then escala...14 years ago
-
Susan and Soho - Most of Video Blog #13 was shot almost year ago when Susan first returned to NY from 5 years in LA. She remembers when we used to go out dancing, and when ...14 years ago
-
Nerves - Starting to get nervous about my next infusion. It's number 12. -- Post From My iPhone14 years ago
-
We Are Moving! - Yes, we're moving. Actually, on Tuesday, May 26, *WTF* will go quiet and I will begin blogging in a new location with a new name: Wrath66.com. With the n...14 years ago
-
If I’m the camel’s back, then this is the straw… - I haven’t posted on my blog for a very long time (not since I was moved to this new address, in fact!), even though I have had reason to do so since gettin...14 years ago
-
New Relapse =( - I went to my neurologist yesterday and she told me that I am having another MS relapse. This one is not fun. It started after the farm field trip a couple ...15 years ago
-
Off Topic but Important - Proposition 8 in California - I've never posted an off topic post before but this one was so important to me that I have to post about it. I haven't seen a place where all the facts and...15 years ago
-
Hello world! - Welcome to WordPress.com. This is your first post. Edit or delete it and start blogging!15 years ago
-
-
CROCS CARES - Learn more about How you can get a spiffy new pair of CROCS and help the fight against MS.15 years ago
-
From Jooly - Dear Sandie fans, Sandie has taken a rest from writing her blog for a while. I have spoken to her recently and she sounds really well. She recently celebra...15 years ago
-
A Pragmatic Look At Filing A Disability Claim - This is a companion to two other pieces on this site, Disability Insurance Basics and The Social Security Offset. They're long and there's some duplication...17 years ago
-
-
-
-
-
-
-
-
-
-
NMO Blogs
-
-
-
Summer!6 years ago
-
I'm Blogging Again...11 years ago
-
I'm Blogging Again...11 years ago
MS Caregivers and Loved Ones
-
Becoming a Family Caregiver2 years ago
-
Is Anybody Out There?3 years ago
-
-
-
-
Changing Routines6 years ago
-
-
The New Ride7 years ago
-
Bad Timing in My Third Trimester8 years ago
-
-
Spring is Here!8 years ago
-
-
Update about updates10 years ago
-
Research Study Update11 years ago
-
bloody blogger!11 years ago
-
Will you be my Witness?11 years ago
-
-
-
MsMri_xvid_11.avi13 years ago
-
Goodnight, and Thank You!13 years ago
-
What’s next?13 years ago
-
I'm back :)13 years ago
-
It's been awhile...and not so good news14 years ago
-
Introduction and Involvement14 years ago
-
-
-
-
-
Labels
- Ability (1)
- Accelerated Cure Project (1)
- Acceptance (9)
- Accessibility (3)
- Accommodations (2)
- Acthar Gel (1)
- ADA (1)
- Adaptations (1)
- Advocacy (5)
- Anger (3)
- Anniversary (2)
- Anti-inflammatory (1)
- Anxiety (1)
- Appearances (1)
- Aubagio (1)
- Awards (1)
- Awareness (4)
- Balance (1)
- Battles (1)
- Biosimilar Drugs (1)
- Bladder Dysfunction (1)
- Blogging (6)
- Blood Donation (1)
- Bowel Dysfunction (1)
- Brains (1)
- Caregivers (4)
- CCSVI (3)
- Celebrity (2)
- Challenges (1)
- Chronic Illness (2)
- Cognitive Reserve (3)
- Colds and Flu (1)
- Communication (3)
- Community (4)
- Compromise (1)
- Constipation (1)
- Cooling Equipment (1)
- Copaxone (1)
- Coping (5)
- Courage (3)
- Creativity (3)
- Dancing (1)
- Death (1)
- Denial (1)
- Depression (5)
- Determination (1)
- Diagnosis (15)
- Dignity (1)
- Disability (12)
- Disease-Modifying Drugs (5)
- Disintegration (1)
- Diversity (1)
- Doctors (4)
- Elections (1)
- Emotions (3)
- Employment (1)
- Empowerment (2)
- Endurance (1)
- Euthanasia (1)
- Exercise (3)
- Explaining MS (1)
- Faith (1)
- Family (1)
- Family Medical Leave Act (1)
- Fatigue (4)
- Fears (3)
- Fertility (1)
- Fingolimod (1)
- Food (4)
- Freedom (2)
- Friendship (2)
- Frustration (5)
- George Jelinek (1)
- Gilenya (1)
- Gratitude (8)
- Grief (3)
- Guilt (1)
- Gut Health (1)
- Health Policy (6)
- Heat Effects (5)
- Helping Others (2)
- Honesty (2)
- Hope (8)
- Housekeeping (1)
- How Are You? (1)
- Humor (13)
- I Can (1)
- Identity (1)
- Illness (1)
- Immortality (1)
- Incontinence (1)
- Infection (1)
- Injections (2)
- Insomnia (5)
- Inspiration (45)
- Insurance (4)
- Internet (1)
- Invisible Illness (1)
- Irony (2)
- Isolation (1)
- Jack Osbourne (1)
- Joy (1)
- Kindness (3)
- Lesions (1)
- Living With MS (7)
- Love (7)
- Lumbar Puncture (1)
- Massage (1)
- Medications (5)
- Memory (1)
- Mental Health (3)
- Mobility (11)
- Money (3)
- Monsters (1)
- Montana (1)
- Montel Williams (2)
- Mood (1)
- Motherhood (1)
- Motivation (3)
- MRI (1)
- MS Books (1)
- MS Hug (2)
- MS Huge (1)
- MS Research (1)
- MS Stories (1)
- MS Walks (1)
- Music (1)
- Nervous System (1)
- Newly Diagnosed (7)
- NMSS (1)
- Not Always MS (1)
- Numbness (1)
- Nutrition (5)
- Optimism (2)
- Parenting with MS (1)
- Parking Permits (3)
- Photography (6)
- PhRMA (1)
- Physical Therapy (1)
- Poetry (25)
- Political (1)
- Positivity (2)
- Power of Breathing (1)
- Power of Positive Thinking (1)
- Pregnancy (1)
- Primary Progresive MS (1)
- Primary Progressive MS (1)
- Privacy (1)
- Probiotics (1)
- Proprioception (1)
- Pseudoexacerbations (3)
- Psychotherapy (1)
- Rehabilitation (1)
- Reinvention (1)
- Relapse (4)
- Relapse Free (1)
- Relationships (22)
- Research (2)
- Resolutions (1)
- Rest (1)
- Restless Legs (1)
- Retreat (1)
- Richard Cohen (1)
- Roller Coaster (1)
- Secondary Progressive MS (2)
- Self-Catheterisation (1)
- Sensations (1)
- Service Dogs (1)
- Sex (2)
- Shingles (1)
- SiCKO (1)
- Sleep Disorders (1)
- Social Security (4)
- Solumedrol (5)
- Spiritual (3)
- Standing Frame (1)
- Stem Cells (1)
- Strength (6)
- Stress (1)
- Struggles (4)
- Suffocation (1)
- Summer Time (1)
- Superpowers (1)
- Support (1)
- Swimming (1)
- Symptoms (11)
- Synchronicity (1)
- Teriflunomide (1)
- Traveling with MS (1)
- Tremors (1)
- Trigeminal Neuralgia (1)
- Tysabri (2)
- Ugh (1)
- Unknowns (2)
- Urology (1)
- Vision (2)
- Vitamins (2)
- Walking (2)
- Wedding (1)
- Wheelchair (3)
- Who to Tell (4)
- Yoga (6)
- YouTube (1)